celkan
New Member
We will rise together !
Posts: 20 
Gender: Male
Dev Status: Disabled
Relationship Status: Single
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Post by celkan on Apr 24, 2024 20:01:33 GMT -5
Thje first hour after I wake up in the morning. I have fucking pain and it goes away after. Or sometimes after I go pee and I have a hard time puting my pants up again.
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Post by mnquad07 on Apr 25, 2024 15:53:41 GMT -5
sometimes, when you first wake up you forget your paralyzed you forget it all. Then when you realize the reality of it all, it all comes crashing down on you and it really really sucks
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Post by Dr. BiPAP Sachin on Apr 25, 2024 18:56:57 GMT -5
Yesterday, I got a phone call off the hospital saying that I have got bowel cancer! Honestly, I thought breaking my neck was bad, but it hit me like a cannonball! So I am getting on with things, I am sorting myself out of 4x4 electric wheelchair as I want to do a few miles around Worcestershire where I live. Honestly, I am 51 my friends and I’m telling you this enjoy your life when you can. It goes by so quickly. Pete, I'm sorry to hear that bro. I agree with the sentiment toward the end of your post. Live for today 'cause you never know what the future might bring your way. You'll be in my thoughts bud. |
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Post by Dr. BiPAP Sachin on Apr 25, 2024 19:07:36 GMT -5
The worst part of my day is in the morning after breakfast when I have to worry about whether I'll be able to go #2 in the bathroom. I'm ngl, constipation can be a serious problem with DMD due to weak diaphragm and abdominal muscles. Most of the time, I go fine, but every once in a while... ok that's probably tmi, so let's leave it at that, lol.  |
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anonymitea
Junior Member
Posts: 77 
Gender: Female
Dev Status: Devotee
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Post by anonymitea on Apr 25, 2024 21:41:14 GMT -5
britishtetra That's so sad to hear! I hope it's early enough that the treatments aren't too rough. Wishing you all the best!
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Post by justnick on Apr 25, 2024 22:42:03 GMT -5
When I log onto PD and there are no messages in my inbox from hot devs pledging their undying love to me. Also, when I go for a bowl of cereal in the morning and forgot that I was too lazy to go get milk the day before. Do you have any idea how gross shredded wheat is without milk?
Also, Pete. Dude. I have nothing to say other than you are a fucking rockstar trooper. Whatever your poison is, have one on me.
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curiousginger
New Member
Posts: 24
Gender: Female
Dev Status: Devotee
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Post by curiousginger on Apr 26, 2024 12:12:48 GMT -5
When I log onto PD and there are no messages in my inbox from hot devs pledging their undying love to me. Also, when I go for a bowl of cereal in the morning and forgot that I was too lazy to go get milk the day before. Do you have any idea how gross shredded wheat is without milk? Also, Pete. Dude. I have nothing to say other than you are a fucking rockstar trooper. Whatever your poison is, have one on me. I feel you on the milk, though for me it’s when there’s no milk for my morning cup of tea! |
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curiousginger
New Member
Posts: 24
Gender: Female
Dev Status: Devotee
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Post by curiousginger on Apr 26, 2024 12:14:04 GMT -5
When I log onto PD and there are no messages in my inbox from hot devs pledging their undying love to me. Also, when I go for a bowl of cereal in the morning and forgot that I was too lazy to go get milk the day before. Do you have any idea how gross shredded wheat is without milk? Also, Pete. Dude. I have nothing to say other than you are a fucking rockstar trooper. Whatever your poison is, have one on me. I feel you on the milk, though for me it’s when there’s no milk for my morning cup of tea! Hope it was okay to bring some levity to a serious post 🫣🤞🏻 |
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Post by britishtetra on Apr 30, 2024 9:10:14 GMT -5
Well, yesterday I received a phone call that I am stage four, so it’s straight to chemotherapy and hopefully surgery and hope for the best. So not too dwell on the fact that I may have 18 months left to live I have decided to get the most out of life that I can. I have decided to expand my videos on Facebook a little further in Worcestershire, and to do so I have contacted a company who make 4x4 wheelchairs and I am going to get one get out of the house. I have saved my money for years, so I am going to bloody spend it, because trust me you do not want a phone call what I had yesterday. Life is for living my friends. Unfortunately, I never met the love of my life on here, and now I don’t think I ever will, but life is here to be enjoyed.
Pete,
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Post by myrrh on Apr 30, 2024 10:56:20 GMT -5
Wishing you all the best, Pete! ❤️
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Post by ichbin on Apr 30, 2024 12:46:27 GMT -5
Thinking of you, britishtetra Pete! I hope you'll get your 4x4 wheelchair soon and will have a blast with it! |
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Post by mnquad07 on Apr 30, 2024 14:11:19 GMT -5
Well, yesterday I received a phone call that I am stage four, so it’s straight to chemotherapy and hopefully surgery and hope for the best. So not too dwell on the fact that I may have 18 months left to live I have decided to get the most out of life that I can. I have decided to expand my videos on Facebook a little further in Worcestershire, and to do so I have contacted a company who make 4x4 wheelchairs and I am going to get one get out of the house. I have saved my money for years, so I am going to bloody spend it, because trust me you do not want a phone call what I had yesterday. Life is for living my friends. Unfortunately, I never met the love of my life on here, and now I don’t think I ever will, but life is here to be enjoyed. Pete, UM UM UM. I wish nothing but the best and have fun. 4 x 4 chairs look awesome, so yeah I'm jealous on that part. Keep on keeping on! |
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Post by devogirl on Apr 30, 2024 21:40:01 GMT -5
So sorry to hear it britishtetra. We're thinking of you, hang in there! Have you published your book yet? |
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Post by britishtetra on May 1, 2024 1:32:29 GMT -5
No, I am still editing, I use AutoCrit have you heard of that?
Pete
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anonymitea
Junior Member
Posts: 77
Gender: Female
Dev Status: Devotee
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Post by anonymitea on May 1, 2024 18:37:57 GMT -5
britishtetra That's some really tough news. However, I'm glad for your wake up call to live life! Eat yummy food, go out, make memories, carpe diem and all that! Wishing you all the best!
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