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Post by darthoso on Jun 10, 2018 8:16:13 GMT -5
Been alright, saw some friends in Raleigh before my last Spinraza injection. Hotel screwed up my reservation (forcing my PCA onto a cot), screwed up her dinner, and screwed up a friend's drink. Had a new Radiologist do the injection which led to a headache from absolute hell and nearly throwing my guts up in the car. Good trip though overall despite everything.
Hired a military couple to live in the guest house as my night PCA. The husband just got out of the Marines so he's the primary, the wife is still in the Marines so she's the back up. Nights have been really difficult to fill but this seems to be working out really good. Now I just need to replace my day PCA who just graduated nursing school. I hate recruiting.
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Post by britishtetra on Jun 10, 2018 17:51:25 GMT -5
Well today is my 46th birthday and I have been in my wheelchair 28 years this September. The extent of my break was that I was only given 17 years, so I’m grateful. Yesterday I had a party in my garden surrounded by my cousins with there children and I can still remember my cousin’s as children playing in the garden of my grans. To all you guys with sores, I brought a cream that clears them up in a couple of weeks, message me for details. This month I’m getting fitted up for mouth controls wheelchair and I’m going to my British Army reunion which will be strange. I am one of the most disabled men in my old Regiment and I’m worried sick. I’ve started a online poetry course, I’ve written hundreds over the years and it’s nice to learn more. This is going to be a great month for me… umm hopefully,
Pete
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Post by Pony on Jun 10, 2018 17:55:10 GMT -5
I've heard this story one than once, man...hang in there! There are some girls that still appreciate you for WHO you are...still, the pain must rock you to your foundation.
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Post by blueskye101 on Jun 10, 2018 19:14:57 GMT -5
Well today is my 46th birthday and I have been in my wheelchair 28 years this September. The extent of my break was that I was only given 17 years, so I’m grateful. Yesterday I had a party in my garden surrounded by my cousins with there children and I can still remember my cousin’s as children playing in the garden of my grans. To all you guys with sores, I brought a cream that clears them up in a couple of weeks, message me for details. This month I’m getting fitted up for mouth controls wheelchair and I’m going to my British Army reunion which will be strange. I am one of the most disabled men in my old Regiment and I’m worried sick. I’ve started a online poetry course, I’ve written hundreds over the years and it’s nice to learn more. This is going to be a great month for me… umm hopefully, Pete Happy Birthday Pete. 🎂🍺🎂
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Post by bunster on Jun 15, 2018 22:59:42 GMT -5
the last few days for me have SUCKED. my bf's aide has been especially cock-blocky, the pollen here is incredibly bad and i stepped on a piece of glass and my foot bled like a geyser. i know that might not sound that bad but a bunch of other sucky things are going on. hope everyone has a good weekend and hope mine is as well!
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Post by bunster on Jun 15, 2018 23:00:47 GMT -5
IMO a good thing to do for the future but i am sure you are going through a gamut of feelings right now. stay strong! Thanks I'm good. Another kind PDer PM'd me about this earlier today and I think I should give an update: We actually are back together. Right after we broke up some shit went down with her family that made her take a hard look in the mirror and she's actually really started getting her act together. I'm incredibly proud of her, she even introduced me to her son recently, and it went very well. Hopefully we're going to be ok yay! love the good news
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Post by bunster on Jun 15, 2018 23:03:21 GMT -5
Well today is my 46th birthday and I have been in my wheelchair 28 years this September. The extent of my break was that I was only given 17 years, so I’m grateful. Yesterday I had a party in my garden surrounded by my cousins with there children and I can still remember my cousin’s as children playing in the garden of my grans. To all you guys with sores, I brought a cream that clears them up in a couple of weeks, message me for details. This month I’m getting fitted up for mouth controls wheelchair and I’m going to my British Army reunion which will be strange. I am one of the most disabled men in my old Regiment and I’m worried sick. I’ve started a online poetry course, I’ve written hundreds over the years and it’s nice to learn more. This is going to be a great month for me… umm hopefully, Pete happy belated birthday! the party sounds like it was wonderful hope the reunion goes well and that online poetry sounds delightful. have a great weekend!
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Post by pam on Jun 16, 2018 9:50:56 GMT -5
I don’t really comment often but my months been pretty shitty. Found out my gf has been sleeping with my old coworker/ old business partner since I got in my accident almost two years ago. But I’ve learned in life karma is a bitch. He lost the welding contract I had gotten him for not keeping up to code but it isn’t my problem anymore. Good news my baby girl graduated preschool and I’m proud of my little world Sorry to hear about your girlfriend. Your daughter is beautiful.
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Post by pam on Jun 16, 2018 9:55:32 GMT -5
the last few days for me have SUCKED. my bf's aide has been especially cock-blocky, the pollen here is incredibly bad and i stepped on a piece of glass and my foot bled like a geyser. i know that might not sound that bad but a bunch of other sucky things are going on. hope everyone has a good weekend and hope mine is as well! Hope you weekend goes better. Take care of you foot. As far as the pollen, there is plenty here too.
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Post by bunster on Jun 16, 2018 12:00:04 GMT -5
thanks. i live in the high desert and it doesn't usually get this bad but with all the rain it's just gone bananas! have a good weekend
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Post by Hopper on Jun 16, 2018 14:02:05 GMT -5
So today I flew the nest and....yeah. It's been a strange day.
I've not met all of the other housemates yet and so far they seem a varied but distant bunch (not towards me, but to each other).
My room's small but practical. I've been anxious at times but it's very early days yet.
The town I'm in is one I know very well and I'll admit, even that is comforting to a degree.
I just need to keep positive and remember what a good experience this'll be. Even if I won't see much of people.
I can already feel as if something's been lifted.
And y'know what? I'm damned proud of myself for getting over issues that were holding me back.
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Post by Deleted on Jun 21, 2018 9:50:44 GMT -5
I was having a great week up until about an hour ago. I was supposed to have a date tonight and I texted her to confirm the time. I wasn’t expecting the reply to be the “sorry, I think you’re a great guy but your disability is just too much for me. I’d love to just be friends” spiel. Gee, thanks. This didn’t occur to you until just now? Fuck, this is getting really old.
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Post by frankj on Jun 21, 2018 10:45:36 GMT -5
My week so far: On Monday I started with food poisoning, so I called in sick from work and went back home. Tuesday and Wednesday I stayed home and today I went back to work. Today I also resigned my job at Shell. Not because I want to leave the company, but because of some freak rule of HR that says that I can only apply for other jobs at Shell if I have approval of my manager or if I resigned my current job. And since my manager would not approve me moving to another team... It's just weird!
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Post by Hopper on Jun 21, 2018 10:54:45 GMT -5
Sorry to hear about your job frankj HR can be awful at the best of times. I know it's up to the Manager's discretion whether they keep you on or not but it does seem strange. Is it fairly easy to find something else in your line of work?
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Post by frankj on Jun 21, 2018 12:13:15 GMT -5
Sorry to hear about your job frankj HR can be awful at the best of times. I know it's up to the Manager's discretion whether they keep you on or not but it does seem strange. Is it fairly easy to find something else in your line of work? There's more than enough work for Dutch natives in Krakow, but I am not looking for another Customer Service job. So, hopefully I'll find something else here. Otherwise I'm going back to Holland in October. Which would be a shame, but better that than to stay in a job I positively revile...
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