loreley
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Post by loreley on Oct 23, 2018 16:46:49 GMT -5
Hi Nofacue,
here in Germany you will either be fitted with a wheelchair in hospital or in a rehab centre depending on your type of injury/disease or you make an appointment with a mobility aids retailer and find out what type of chair is most suitable for you. You get a new chair if your condition changes or if you have put on or lost weight for example, and about every 7 years you can say that your old chair is so run-down that you need a new one. A wheelchair needs to fit like a shoe, so you have to be measured for width, proper angle, height of back etc. An ill-fitting chair where you sit uncomfortably can actually cause severe health problems in the long run. Welcome to PD, by the way!
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janzax
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Post by janzax on Nov 8, 2018 7:42:17 GMT -5
Is it wrong I now want to post a pic of my chair to see if i'm stylish šš
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katdob
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Post by katdob on Nov 19, 2018 8:00:16 GMT -5
Wouldnāt say I am attracted to the chair but I do prefer someone in a manual chair. I also get what people are saying about itās got to look neat / stylish.
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Post by JW on Nov 27, 2018 16:00:22 GMT -5
Hi Nofacue, here in Germany you will either be fitted with a wheelchair in hospital or in a rehab centre depending on your type of injury/disease or you make an appointment with a mobility aids retailer and find out what type of chair is most suitable for you. You get a new chair if your condition changes or if you have put on or lost weight for example, and about every 7 years you can say that your old chair is so run-down that you need a new one. A wheelchair needs to fit like a shoe, so you have to be measured for width, proper angle, height of back etc. An ill-fitting chair where you sit uncomfortably can actually cause severe health problems in the long run. Welcome to PD, by the way! No such luck here in Jamaica. At the hospital, you are lucky just to get out in one piece and the rehab centre is crap. They know nothing about wheelchairs. Any rehab store in Kingston sells very basic rehab products and the only chairs you will find are hospital wheelchairs. After my accident in 1998 I went to do rehab in Cuba and my mother bought me a Quickie wheelchair and shipped it down to Jamaica from the U. S. At the time I thought being in a wheelchair would be a temporary thing and I would be up and walking again in 6 to 12 months or so, (wishful thinking), so I didn't really focus on style or anything like that and never even heard of being fitted for a wheelchair until many years later when I was already well into my second wheelchair. Insurance covers nothing here. If you are lucky to have insurance it will cover the portion of some hospital visits or doctor's appointments, nothing more. In addition, if you want anything other than an ordinary hospital chair, then you're going to have to import it. If you're importing anything then you have to pay import duty, which is about 75% of the value of what you are bringing down. Then you add any extra taxes or fees and you end up paying basically twice the price for anything you're importing. So, if you buy a US$2,000 chair, it ends up costing you about US$4,000.... all out of my own pocket. The US$ to J$ exchange rate is not really favourable either. Luckily I had a good job and income at the time and grew up in an upper middle class home, so it was difficult but manageable. Any poor or lower income individual here would just have to get stuck with a hospital chair basically. I am on my third chair now and it was only about a year or two before I got it that I started to think about style or aesthetic for myself, much less what someone else might think of what it looks like. The new chair is so much better and more comfortable than the previous ones. I sent in my measurements and weight to the company and had it made to fit me. It also has a lower back, an ergonomic and adjustable seat and āfrog legsā on the front casters to make the bumps and rough terrain easier to handle. I still have flip down armrests on it since I need the support since Iām a lower quad and not one of those lucky paras with all their back nerves and muscles. Iām really loving it. It makes such a difference when you know what your body likes and needs in a chair.
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Post by propheticstature on Nov 27, 2018 18:21:27 GMT -5
Hi Nofacue, here in Germany you will either be fitted with a wheelchair in hospital or in a rehab centre depending on your type of injury/disease or you make an appointment with a mobility aids retailer and find out what type of chair is most suitable for you. You get a new chair if your condition changes or if you have put on or lost weight for example, and about every 7 years you can say that your old chair is so run-down that you need a new one. A wheelchair needs to fit like a shoe, so you have to be measured for width, proper angle, height of back etc. An ill-fitting chair where you sit uncomfortably can actually cause severe health problems in the long run. Welcome to PD, by the way! No such luck here in Jamaica. At the hospital, you are lucky just to get out in one piece and the rehab centre is crap. They know nothing about wheelchairs. Any rehab store in Kingston sells very basic rehab products and the only chairs you will find are hospital wheelchairs. After my accident in 1998 I went to do rehab in Cuba and my mother bought me a Quickie wheelchair and shipped it down to Jamaica from the U. S. At the time I thought being in a wheelchair would be a temporary thing and I would be up and walking again in 6 to 12 months or so, (wishful thinking), so I didn't really focus on style or anything like that and never even heard of being fitted for a wheelchair until many years later when I was already well into my second wheelchair. Insurance covers nothing here. If you are lucky to have insurance it will cover the portion of some hospital visits or doctor's appointments, nothing more. In addition, if you want anything other than an ordinary hospital chair, then you're going to have to import it. If you're importing anything then you have to pay import duty, which is about 75% of the value of what you are bringing down. Then you add any extra taxes or fees and you end up paying basically twice the price for anything you're importing. So, if you buy a US$2,000 chair, it ends up costing you about US$4,000.... all out of my own pocket. The US$ to J$ exchange rate is not really favourable either. Luckily I had a good job and income at the time and grew up in an upper middle class home, so it was difficult but manageable. Any poor or lower income individual here would just have to get stuck with a hospital chair basically. I am on my third chair now and it was only about a year or two before I got it that I started to think about style or aesthetic for myself, much less what someone else might think of what it looks like. The new chair is so much better and more comfortable than the previous ones. I sent in my measurements and weight to the company and had it made to fit me. It also has a lower back, an ergonomic and adjustable seat and āfrog legsā on the front casters to make the bumps and rough terrain easier to handle. I still have flip down armrests on it since I need the support since Iām a lower quad and not one of those lucky paras with all their back nerves and muscles. Iām really loving it. It makes such a difference when you know what your body likes and needs in a chair. Wow, I've got tons of questions for you. How was the rehab in Cuba? I've heard of the Cuban government's relatively heavy investment in health care (and how they send doctors to under-served areas abroad--the ones returning from Brazil have been in the news lately) but how did it look to you? Were you satisfied with the care? I think Americans' ears perk up a little every time someone mentions going to Cuba, as if it's some forbidden fruit, haha. Hopefully that will change someday. And you mentioned being an upper middle class Jamaican with more options than someone who wasn't as fortunate... but I'm curious how that worked for you immediately after your injury. I'm assuming you went because the facilities/expertise simply weren't available where you were, so did you have any help from either your government or your insurance in getting to Cuba for the necessary therapy? Or did that come out of your own pocket also? To bring this back on the topic of wheelchairs though: Something I noticed when I was in inpatient rehab right after my injury were those front caster wheels that light up when spinning. When they were measuring me there were some things that were optional, like handles on the back (which I don't use, I don't want people even -tempted- to push me***), colors, etc., they asked me if I wanted the light-up caster wheels. I thought that would look pretty dumb, since I was 21 at the time of my injury, and wasn't sure I wanted to attract any more stares than I knew I would be getting. Light-up wheels would look ridiculous on me! They seemed like something more suited for kids...? There was an 11 year old girl who was really enthusiastic about getting them for her first chair, and that was my impression of who went for that kinda thing. The very next day, I saw a buncha really tough-looking guys from Mexico there, either just here in the US to get some outpatient therapy, or possibly on a tour with a sports team. These guys were all tattooed, burly, and athletic. What caught my eye the most was that yes, every single one of them had light-up caster wheels! I guess maybe those were just really in style south of the border at the time, haha. Definitely changed my perception, though! ***Obviously, exceptions are made if I think you're pretty! This got me into trouble once, though. There was a curb I was having trouble pushing over outside a restaurant, and an attractive woman nearby offered to help. Of course I acquiesced, hoping for an opening to start another conversation with her. I did a wheelie and put my caster wheels up onto the curb, and asked her to just lift the back of the chair a little bit. At the specific moment she lifted the back, I was still pushing my big wheels forward. So all of a sudden while I was pushing, the wheels became free any hands shot forward. *Both* of my thumbs slammed into my brakes; must have been a one-in-a-million thing. I broke my left thumb, but thankfully only jammed the right thumb (I'm right-handed). Luckily it didn't limit my mobility too much in the weeks after, but I had to be careful with it. I was in so much pain when it happened I forgot to get her number. I'm sure she would given it out of sympathy at the very least... So let that be a lesson everyone--if you use a manual chair, go for the "under seat" brakes if you can! I might have missed out on a great opportunity there.
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Post by devogirl on Nov 28, 2018 7:22:05 GMT -5
*Both* of my thumbs slammed into my brakes; must have been a one-in-a-million thing. I broke my left thumb, but thankfully only jammed the right thumb (I'm right-handed).
I have heard that type of brake called "thumb-breakers." So I don't think it was a one-in-a-million thing but actually a very common problem caused by a design flaw. Some of the paras I have known and even a low quad did not have brakes at all so I guess you don't always need them.
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donabbey
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Post by donabbey on Nov 28, 2018 10:00:45 GMT -5
For me itās all about weight, materials and performance. Nothing beats angle, cast , or billet aluminum. Of course, that is afar more expensive investment. Having a 10, 000 dollar custom built Spinergy would be great. But itās out of reach for most of us, me included. But a hospital chair will actually injure you in the long term. Also, not every surface is as smooth as the main isle in Walmart. But where it is at is your wheels. Spoke aluminum with billet adjustable hubs are very pricey and itās best to spare no expense. But if you are an active wheelchair user, you will need to be able to handle different terrains and obstacles with ease. My main test is tall grass. If your wheelchair can move to a certain degree through two or three foot tall grass you are good. Just the wheels alone massively increase performance. Oh and get a good seat. If your ass hurts after five minutes, move your meat and ditch the seat. I can go miles at a time in my wheelchair, thankfully. Plus you will be more likely to keep it clean and nice.
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donabbey
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Post by donabbey on Nov 28, 2018 11:01:49 GMT -5
I have purple accents on my casters and damned proud of it. It was a nod to my daughter (her favorite coloNow we are talkingI employ the same caserts and wheel.
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donabbey
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Post by donabbey on Nov 28, 2018 11:20:34 GMT -5
As someone new to the wheelchair game....how....when...what....why....and huh ? Where do you get these chairs ? Does insurance cover the costs ? The hospital put me in a chair Didnāt think they were like clothes or accessories but just a ways for mobility...for a little bit of freedom. Interesting The top two brands are Quickie and Spinergy. Those are also frame styles. Quickies are more of a childrenās build but they are a performance chair. If you find yourself needing your chair for an extended amount of time. Look on the internet by searching performance wheelchairs. If money is no object to you I highly recommend Spinergy. There chairs range from 4K to 10k and up. If you are needing a cheaper option, there really isnt any. But Spinergy will sell you any wheelchairthey make even if you building yourself and you buy a wheel here, a hub there. Insurance, Iām not sure Iāve never used it. Slow build your wheelchair if possible. Thanks to Obamacare and the medical devices tax in the health care law, a 40% sales tax is now levied on wheelchairs. So much for affordable. If Medicare pays, you still have to come up with 20% out of pocket. With the cheapest garbage hospital chairs retailing at a thousand dollars, the math is clear. Buying piece by piece is the best option. And will also promote exercise and well being. Freedom is the icing on the cake. Hope that helps. Any more questions drop me a line.
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nofacue
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Post by nofacue on Nov 28, 2018 19:05:40 GMT -5
As someone new to the wheelchair game....how....when...what....why....and huh ? Where do you get these chairs ? Does insurance cover the costs ? The hospital put me in a chair Didnāt think they were like clothes or accessories but just a ways for mobility...for a little bit of freedom. Interesting The top two brands are Quickie and Spinergy. Those are also frame styles. Quickies are more of a childrenās build but they are a performance chair. If you find yourself needing your chair for an extended amount of time. Look on the internet by searching performance wheelchairs. If money is no object to you I highly recommend Spinergy. There chairs range from 4K to 10k and up. If you are needing a cheaper option, there really isnt any. But Spinergy will sell you any wheelchairthey make even if you building yourself and you buy a wheel here, a hub there. Insurance, Iām not sure Iāve never used it. Slow build your wheelchair if possible. Thanks to Obamacare and the medical devices tax in the health care law, a 40% sales tax is now levied on wheelchairs. So much for affordable. If Medicare pays, you still have to come up with 20% out of pocket. With the cheapest garbage hospital chairs retailing at a thousand dollars, the math is clear. Buying piece by piece is the best option. And will also promote exercise and well being. Freedom is the icing on the cake. Hope that helps. Any more questions drop me a line. Thanks for the tips donabbey...looking on the internet, Iām finding out that wheelchairs can be quite expensive. never thought about building my own...Didnāt know it was possible. Good to know,and Iām going to look into it. Right now Iām sporting aTracer from the aftercare facility that gave me it after my surgery. Not pretty but it works. Thereās a tv show called ā Momā with a disabled guy in a wheelchair and I really like that style of chair...never shows him transferring though...lol anyways thanks again.
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Post by JW on Nov 30, 2018 11:31:48 GMT -5
Wow, I've got tons of questions for you. How was the rehab in Cuba? I've heard of the Cuban government's relatively heavy investment in health care (and how they send doctors to under-served areas abroad--the ones returning from Brazil have been in the news lately) but how did it look to you? Were you satisfied with the care? I think Americans' ears perk up a little every time someone mentions going to Cuba, as if it's some forbidden fruit, haha. Hopefully that will change someday. And you mentioned being an upper middle class Jamaican with more options than someone who wasn't as fortunate... but I'm curious how that worked for you immediately after your injury. I'm assuming you went because the facilities/expertise simply weren't available where you were, so did you have any help from either your government or your insurance in getting to Cuba for the necessary therapy? Or did that come out of your own pocket also? Well.... it is hard to make a proper comparison, but I'll try. During my time there, I stayed in two different rehab centres in Havana. The first one was a general public rehab centre for the Cuban people. There were about a few hundred people who either lived there or visited the centre every day with physical disabilities of one kind or another. It was huge. The only patients who were not Cuban were me and an 18 year old guy from The Bahamas who were roomed in a special visitor's wing of the hospital. Cuba is known for having many many doctors and health professionals. Since the cost of education is fully covered by the government, many train in fields such as engineering and medicine. They sometimes train those from other Caribbean Islands as well. Some Jamaicans go to study medicine in Cuba if they can't get into our own University as there are a lot of institutions for training there. Because there are so many doctors and the communist system doesn't allow people to get paid at different levels, the janitor at the hospital will earn about the same amount of money as the chief surgeon or head of the hospital (which is not much) and many leave the medical profession to become taxi drivers, because taxi drivers earn more money since they can get tips in US dollars from tourists. That's why they have so many doctors to send overseas. It's hard to judge how good the doctors were relative to other countries since there were so many of them, not many of them spoke English, I spoke very little Spanish and it was a completely different system. There were 3 different rehab hospitals that I knew of. The first was a fully public hospital for the general population that I mentioned. The second one I did rehab at was kind of more specialized and smaller, with only a few specialists who gave one on one attention. That was more for patients visiting from abroad like me. There was a third one I checked out which was more like a luxury resort, with spa treatments etc. I never stayed there because it was way too expensive. There were lots of rich patients there from Latin American countries. All the doctors and nurses were very friendly and helpful. The nursing care here in Jamaica is not great. Jamaican nurses might know their job, but they are overworked and often times unpleasant to deal with. The Jamaican doctors Iāve dealt with have been quite good and attentive. They have been very straight forward and honest about any medical diagnoses or issues Iāve dealt with. The Cuban doctors would promise me the world. A few of them made wonderful promises of me walking again. But I knew those promises really meant nothing because they can't get sued in Cuba and love the influx of cash they can get from visiting patients from other countries, so they try to get you to stay as long as possible. In the U.S., doctors and hospitals seem to be constantly worried about the possibilities of malpractice lawsuits and the cost of malpractice insurance. No such worries in Cuba (not necessarily a good thing). Iām guessing that's why there are so many news reports in the U.S. of "miracle" recoveries from patients who ābeat the oddsā after a doctor told them they would never recover from whatever injury or disability. After all, it must be a lot safer to just give someone the negative outlook and have the patient recover āmiraculouslyā than have to worry about the hospital getting sued later on. The rehab centre here in Kingston is crap. I went there briefly after I came back from over a year in Cuba and they didn't have any real weights or exercise equipment and the people there were puzzled about the various exercises Iād learned, like they were seeing them for the first time. I never went back again. The Jamaican government does nothing but give you a monthly disability payment every month based on a fraction of your income level at the time of the accident. No one relies on that. I applied for my disability back in 2000 and it didnāt come through until about 2015 or 2016. I can buy about two weeksā worth of groceries with that money. Itās not enough for anyone to live on. My parents paid for all of the medical and hospital expenses in the beginning. I was 22 at the time, out of University for two years and basically broke, since all of my income was spent on my car payments and gas money. Young people donāt usually get insurance, and I had none at the time. I only have insurance now through the company I work for. I could never afford insurance on my own after my accident. When I got back to Jamaica and went back to work I started paying my own way for all medical expenses such as surgeries, appointments and medication since then. I eventually got an insurance cheque from my company for the accident and arears from the government for all the years of disability payments while I waited on the bureaucracy. But if I had been just sitting and waiting on those to come through to help me when I needed it, I would have been dead a long time ago.
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Post by propheticstature on Nov 30, 2018 11:48:57 GMT -5
Well.... it is hard to make a proper comparison, but I'll try. During my time there, I stayed in two different rehab centres in Havana. The first one was a general public rehab centre for the Cuban people. There were about a few hundred people who either lived there or visited the centre every day with physical disabilities of one kind or another. It was huge. The only patients who were not Cuban were me and an 18 year old guy from The Bahamas who were roomed in a special visitor's wing of the hospital. Cuba is known for having many many doctors and health professionals. Since the cost of education is fully covered by the government, many train in fields such as engineering and medicine. They sometimes train those from other Caribbean Islands as well. Some Jamaicans go to study medicine in Cuba if they can't get into our own University as there are a lot of institutions for training there. Because there are so many doctors and the communist system doesn't allow people to get paid at different levels, the janitor at the hospital will earn about the same amount of money as the chief surgeon or head of the hospital (which is not much) and many leave the medical profession to become taxi drivers, because taxi drivers earn more money since they can get tips in US dollars from tourists. That's why they have so many doctors to send overseas. It's hard to judge how good the doctors were relative to other countries since there were so many of them, not many of them spoke English, I spoke very little Spanish and it was a completely different system. There were 3 different rehab hospitals that I knew of. The first was a fully public hospital for the general population that I mentioned. The second one I did rehab at was kind of more specialized and smaller, with only a few specialists who gave one on one attention. That was more for patients visiting from abroad like me. There was a third one I checked out which was more like a luxury resort, with spa treatments etc. I never stayed there because it was way too expensive. There were lots of rich patients there from Latin American countries. All the doctors and nurses were very friendly and helpful. The nursing care here in Jamaica is not great. Jamaican nurses might know their job, but they are overworked and often times unpleasant to deal with. The Jamaican doctors Iāve dealt with have been quite good and attentive. They have been very straight forward and honest about any medical diagnoses or issues Iāve dealt with. The Cuban doctors would promise me the world. A few of them made wonderful promises of me walking again. But I knew those promises really meant nothing because they can't get sued in Cuba and love the influx of cash they can get from visiting patients from other countries, so they try to get you to stay as long as possible. In the U.S., doctors and hospitals seem to be constantly worried about the possibilities of malpractice lawsuits and the cost of malpractice insurance. No such worries in Cuba (not necessarily a good thing). Iām guessing that's why there are so many news reports in the U.S. of "miracle" recoveries from patients who ābeat the oddsā after a doctor told them they would never recover from whatever injury or disability. After all, it must be a lot safer to just give someone the negative outlook and have the patient recover āmiraculouslyā than have to worry about the hospital getting sued later on. The rehab centre here in Kingston is crap. I went there briefly after I came back from over a year in Cuba and they didn't have any real weights or exercise equipment and the people there were puzzled about the various exercises Iād learned, like they were seeing them for the first time. I never went back again. The Jamaican government does nothing but give you a monthly disability payment every month based on a fraction of your income level at the time of the accident. No one relies on that. I applied for my disability back in 2000 and it didnāt come through until about 2015 or 2016. I can buy about two weeksā worth of groceries with that money. Itās not enough for anyone to live on. My parents paid for all of the medical and hospital expenses in the beginning. I was 22 at the time, out of University for two years and basically broke, since all of my income was spent on my car payments and gas money. Young people donāt usually get insurance, and I had none at the time. I only have insurance now through the company I work for. I could never afford insurance on my own after my accident. When I got back to Jamaica and went back to work I started paying my own way for all medical expenses such as surgeries, appointments and medication since then. I eventually got an insurance cheque from my company for the accident and arears from the government for all the years of disability payments while I waited on the bureaucracy. But if I had been just sitting and waiting on those to come through to help me when I needed it, I would have been dead a long time ago. Awesome, thanks for the reply. As someone who's long been fascinated by both Jamaica and Cuba, this reply is really informative about stuff I didn't know about. I've always thought about visiting both countries, but I would only go as long as I could find away to stay away from that boring touristy luxury resort stuff. I've also been worried that accessibility wouldn't be all that great. How much problems do you have getting around down there? And re: malpractice in the US vs. Cuba, that does make sense. I also didn't know Cuba had the kind of luxury medical tourism that's been gaining popularity in India, Thailand, etc. Although I guess that brings a lot of foreign currency in, like you said.
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Post by JW on Nov 30, 2018 17:58:52 GMT -5
Unfortunately, if you want to stay somewhere truly accessible in Jamaica, a luxury resort would be the best place. They are the only ones who would really take into consideration having a property that is truly accessible to the disabled. Generally speaking, accessibility here is poor. I live in the capitol, Kingston, which is all traffic and no parking spaces. There are very few places that have real disabled parking spaces.... and those spaces are usually taken by able bodied people who just don't give a shit. Buildings don't usually have ramps or ways to get in and entrance ways to most business places have 3 or 4 stairs to keep buildings at a higher level to avoid flooding from torrential rain. There is a mall near to me which is very accessible, with 4 or 5 dedicated wheelchair parking spots and no stairs or curbs to navigate. They have even started to put clamps on cars who violate the posted "Disabled Parking Only" signs. I go there all the time since it's the only real place I can guarantee that I can get parking and get in with no problem. Otherwise, I just have to take my chances whenever I go somewhere else. The country areas are much worse. Aside from the main tourist areas there are not that many modern buildings or amenities that would have been built with the disabled in mind. In addition, the terrain is filled with hills and mountains, potholes and unpaved roads. For tourists looking for a rustic "real Jamaica" experience who might want to go hiking etc. that might be perfect for them, but I wouldn't even think about doing any of that myself. Its hard to get to some rural areas in a car, so you can imagine what you might have to go through in a wheelchair.
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expresso
Junior Member
NYC here -
Posts: 76
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Post by expresso on Oct 15, 2019 22:00:18 GMT -5
I agree with having your chair fitted and always kept clean - who wants to be clean and sit i a dirty chair - i wont feel comfortable at all - black is my only chair color - i like colors on others maybe but cant seem to like them for me - grey tires have to go - look to medical for me for - black real street tires - first things i change on the chair is tires and batteries. push handles have to be below my seat back - - i wont take the chair home if they are not the way i ask for them - head rests i take off and dont use at the moment
my indoor chair has one since i use it at home for some reason - i tilt more etc, - but my outdoor chars i dont use - i remove them and leave them off - first thing that gets done when i get home is transfer chair - Clean Chair - charge it - ready for the next day -
clean is important to me.
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zackamp
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Post by zackamp on Oct 16, 2019 15:30:39 GMT -5
Is it wrong I now want to post a pic of my chair to see if i'm stylish Me too but I don't know how! Hahahah
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