Post by joffy on Sept 22, 2022 11:43:28 GMT -5
Hello my Name is Jon (it’s the Danish version so not pronounced the way you think), So I am from Denmark. 28 years old and I was born with Pompe Disease. And because of that, I have lived my life on wheels for as long as I can basically remember.
For twenty six of the twenty eight years I have been wheeling around on this planet I have been on a ventilator. I can move my fingers and face. And through those movements I make sure I can partake in the activities that suit my interest.
Now you might be wondering what kind of activities do I like? Well let me tell you. I enjoy bowling and am actually pretty damn good at it. In the national league I am actually one of the best. And I try to go bowling weekly. And my goal is and will always remain to win it all. Right now I have ended 2nd a few times or lets be honest a lot of the times but I will be 1st one day soon(this season dammit).
So now that we have discussed my athleticism, let’s go to the more mundane interests I have. Well mundane that depends on the reader I guess.
I love reading books. I read about a hundred books a year, to live a hundred lives a year.( I cant always be bowling)
My reading interests are very broad. I read Science fiction, fantasy, light novels but also have a keen interest in specific kinds of nonfiction like for instance books by Stephen Hawking.
So what else do we have, I am into gaming. But because of my finger mobility I cannot play every game out there anymore. A game I am looking forward to play with my best friend Is Hogwarts Legacy. We have been taking steps to ensure we can enjoy that one together. Sadly it got delayed by a few months. So I got some time to spare before the game releases.
So what else is there to tell about myself? Well I do have a small interest in photography. Because my best friend is a international photographer. So I do get to critique his work form time to time. His big head needs to be kept in check. I also from time to time like to dabble in some light photo editing. But have not done that much recently. Sorry that I don’t have a picture up yet. My friend will fly over soon to get that sorted. I want to look good after all.
So I guess that’s it about me.
But Jon why are you here you might ask?
Well even though I try to live a full life with the abilities at my disposal. I am looking forward to learn more about devotees and what happens on these forums.
For twenty six of the twenty eight years I have been wheeling around on this planet I have been on a ventilator. I can move my fingers and face. And through those movements I make sure I can partake in the activities that suit my interest.
Now you might be wondering what kind of activities do I like? Well let me tell you. I enjoy bowling and am actually pretty damn good at it. In the national league I am actually one of the best. And I try to go bowling weekly. And my goal is and will always remain to win it all. Right now I have ended 2nd a few times or lets be honest a lot of the times but I will be 1st one day soon(this season dammit).
So now that we have discussed my athleticism, let’s go to the more mundane interests I have. Well mundane that depends on the reader I guess.
I love reading books. I read about a hundred books a year, to live a hundred lives a year.( I cant always be bowling)
My reading interests are very broad. I read Science fiction, fantasy, light novels but also have a keen interest in specific kinds of nonfiction like for instance books by Stephen Hawking.
So what else do we have, I am into gaming. But because of my finger mobility I cannot play every game out there anymore. A game I am looking forward to play with my best friend Is Hogwarts Legacy. We have been taking steps to ensure we can enjoy that one together. Sadly it got delayed by a few months. So I got some time to spare before the game releases.
So what else is there to tell about myself? Well I do have a small interest in photography. Because my best friend is a international photographer. So I do get to critique his work form time to time. His big head needs to be kept in check. I also from time to time like to dabble in some light photo editing. But have not done that much recently. Sorry that I don’t have a picture up yet. My friend will fly over soon to get that sorted. I want to look good after all.
So I guess that’s it about me.
But Jon why are you here you might ask?
Well even though I try to live a full life with the abilities at my disposal. I am looking forward to learn more about devotees and what happens on these forums.
