“Squirmy and Grubs” a new Vlog from Laughing at My Nightmare

[Deleted]

Sept 15, 2020 23:27:55 GMT -5 darthoso said:

Sept 15, 2020 22:43:58 GMT -5 wheels0090 said:

I find them interesting especially because Shane and I both have the same disability (SMA Type 2). I like how they’re advocating PWDs can have “normal” lives. However on the flip side, I don’t agree with, what appears to me, using Shane’s disability as a source of income, but that’s the modern age for you, everyone wanting to be an influencer.

Well it is good he's got the income now since getting married would likely end most disability supports, something I wished they'd use their platform to raise awareness of, among other disability policy issues.

They’ve done a video in the last couple of days talking about exactly that. I was impressed by how they discussed their situation and the dreadful issues of disability support in the US.

[ContingentlyComposite]

I'm super happy for them, and I think the work they've done is fantastic and important, but I'm also really hoping they discuss the issues of marrying, and in general just earning an income if you need PCAs, way more on their channel beyond the most recent episode. While it's totally messed up that people doubt the legitimacy of their relationship in comments or whatever, persuading some random morons that their relationship is legit seems so much less deserving of the airtime they give it than the barriers to getting long-term care. PWD who need care are essentially required to live in or near poverty even when taking full advantage of various programs available. It's inhumane and something I feel like almost no one who is not a PWD or close family or friend of a PWD is aware of. I understand policy issues aren't topics that are going to drive more people to their channel, but their following is huge now--they can spend some time talking about the things many people will find a bit dull without major negative consequence.

[pengaroo]

I rediscovered their channel at the start of the year after having read Shane's tumblr some years ago. I agree that it felt a bit over the top. But you have to give it to him, it seems to be pretty effective in raising awareness.
Concerning the channel, I'm a bit ashamed, but I mostly feel envious about their great relationship.

[myrrh]

That's nothing to be ashamed about, they are ridiculously cute together.

[cilantro]

Sept 19, 2020 13:46:31 GMT -5 pengaroo said:

Concerning the channel, I'm a bit ashamed, but I mostly feel envious about their great relationship.

I can't watch their channel because of jealousy. It seriously depresses me to see them so happy together, which is totally my problem but I'm just like I WANT

[pengaroo]

So I had a bit of a shower thought recently: I read the completely understandable position in some threads that people don't want to be the primary carer for their partner. And yet the general opinion here seems to be that something like Hannah and Shane's relationship is something to aspire to.
And now my mind is stuck pondering this question: In general, I agree that I wouldn't want my partner to be my primary carer, but in particular, I'd like to have a relationship akin to theirs.
What do you make of it?

[happyface2013]

Sept 25, 2020 9:07:34 GMT -5 pengaroo said:

So I had a bit of a shower thought recently: I read the completely understandable position in some threads that people don't want to be the primary carer for their partner. And yet the general opinion here seems to be that something like Hannah and Shane's relationship is something to aspire to.
And now my mind is stuck pondering this question: In general, I agree that I wouldn't want my partner to be my primary carer, but in particular, I'd like to have a relationship akin to theirs.
What do you make of it?

I think it really depends.  Like Shane is fairly light so Hannah can manage.  But if the disabled man is bigger, like myself you just couldn't expect a female partner to do it all.

[allison101]

Sept 25, 2020 9:07:34 GMT -5 pengaroo said:

So I had a bit of a shower thought recently: I read the completely understandable position in some threads that people don't want to be the primary carer for their partner. And yet the general opinion here seems to be that something like Hannah and Shane's relationship is something to aspire to.
And now my mind is stuck pondering this question: In general, I agree that I wouldn't want my partner to be my primary carer, but in particular, I'd like to have a relationship akin to theirs.
What do you make of it?

This is definitely food for thought.