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Post by Dr. BiPAP Sachin on Jul 23, 2020 19:13:31 GMT -5
While my family and I have been taking necessary precautions to keep us all safe and healthy from COVID-19, I've been experiencing recurring bouts of sinusitis and postnasal drip for at least two months. Because of my weak respiratory reserves and chronic DMD, this puts me at risk of pulmonary infection with pneumonia. This time around, my pulmonologist put me on three weeks of the antibiotic Augmentin (amoxicillin clavulanate), followed by two weeks of tobramycin (generally used for cystic fibrosis) with an inhaled anti-allergen corticosteroid, as a prophylactic.
I have started coughing up yellow phlegm today, and had a low grade fever, for which I took Tylenol and had to take an afternoon rest on my bed. I’m feeling a bit better, but still not exactly in my elements. I hope I recover soon and don’t end up in the hospital especially during a pandemic like this one.
So here’s my question to all of you PWDs, and especially those of you with chronic illnesses (such as DMD, ALS, SMA, etc.): what do you do to manage and/or treat your respiratory issues, if any? I’d be interested to know your experiences, and hopefully, not feel too alone in that regard.
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Deleted
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Post by Deleted on Jul 23, 2020 20:07:20 GMT -5
I can’t comment on your question, but just wanted to say please look after yourself and I hope you feel much better very soon x
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KingRichard
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Post by KingRichard on Jul 23, 2020 20:13:34 GMT -5
Sorry but I can't help you with your question but stay safe  |
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Post by mike on Jul 23, 2020 21:43:26 GMT -5
This is obviously not helpful, but please don't catch covid.
If you do, the hospital is a place to be extra careful. I've heard a rumor that there are sometimes sick people there. If you do go there with covid,there probably are other patients with it. If you don't have covid, the hospital is a good place to catch it. Best plan is not to get sick.
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Post by devogirl on Jul 24, 2020 0:50:36 GMT -5
This is obviously not helpful, but please don't catch covid. If you do, the hospital is a place to be extra careful. I've heard a rumor that there are sometimes sick people there. If you do go there with covid,there probably are other patients with it. If you don't have covid, the hospital is a good place to catch it. Best plan is not to get sick.
You're right! Nothing in this post is helpful. He's obviously already feeling anxious about this situation. Why would you post something like this? It would have been so much easier to just post nothing at all.
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gin
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Post by gin on Jul 24, 2020 2:15:12 GMT -5
Well, I rarely catch a cold or something, but when I do, I found thyme and cloves to be quite beneficial. They "cleanse" the lungs and respiratory system, and make coughing much easier. You can simply make a tea from them (fresh herbs are preferred, be generous), maybe add some honey (which is also an antiseptic) – but only after it cooled down and is ready to serve. Of course, this is not meant to substitute any of the other drugs you've been talking about, but might prove to be helpful and a good addition nonetheless. Other than that: Be blessed, and get well soon |
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loreley
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Post by loreley on Jul 24, 2020 4:44:54 GMT -5
Not a PWD, but I have allergies and asthma and easily catch colds all the time, just the airconditioning on a train can be enough. What I find helpful and what I use both as a precaution and for treatment during either hayfever or flu season is a cold fogger (PariBoy). They come with different mouthpieces for different indications and ready to use saline solutions or decongestants or can be used with whatever is prescribed for inhalation. Very easy to use. Not sure if nasal irrigation with saline solution is an option for you, this is also very effective.
Hope you feel better soon!
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Post by britishtetra on Jul 24, 2020 6:39:11 GMT -5
I have the odd respiratory problem now and again. Being a tetraplegic of C4/5 I breathe through my diaphragm so avoiding the flu is a must. I got it once, and I nearly ended in my coffin! That’s no exaggeration either.
I would just say look after yourself,
Pete,
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Post by devogirl on Jul 24, 2020 7:44:30 GMT -5
Like loreley said, nasal irrigation is the best thing for sinus infections. I'm not sure if you are able to do it safely but if it doesn't pose a choking hazard for you, definitely do it. The hydro pulse is the best because the vibration makes it much more effective. shop.neilmed.com/Products/HydromedI had constant sinus infections, this changed my life. |
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KingRichard
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Post by KingRichard on Jul 24, 2020 8:24:56 GMT -5
This is obviously not helpful, but please don't catch covid. If you do, the hospital is a place to be extra careful. I've heard a rumor that there are sometimes sick people there. If you do go there with covid,there probably are other patients with it. If you don't have covid, the hospital is a good place to catch it. Best plan is not to get sick.
You're right! Nothing in this post is helpful. He's obviously already feeling anxious about this situation. Why would you post something like this? It would have been so much easier to just post nothing at all.
Agreed mike is just being a asshole |
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Post by mike on Jul 24, 2020 13:05:00 GMT -5
devogirl et.al. My post was an attempt at introducing a little levity into an anxious situation, not to taunt him. I like the guy. How you could possibly misinterpret my intent is unclear to me. This is another illustration of the notion that this is an easily misunderstood medium. If I caused any distress, sorry that was NOT my intent.
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Post by darthoso on Jul 24, 2020 13:26:23 GMT -5
As an SMAer I've found gravity is my best tool to deal with these situations. Drugs and machines are good but using gravity and other physical methods is very helpful. If the crap is in my throat or chest, I'll lay down or upside down. If it's in my sinuses, I'll get up.
It's an art, not a science.
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Post by cilantro on Jul 24, 2020 14:11:01 GMT -5
My mom always taught me to put tiger balm on my back and chest whenever I had a deep cough. Idk if it actually does anything, but I always thought it was quite soothing. For a sinus infection I've used a netipot, but I feel like it would be pretty uncomfortable if you can't tilt your head. Never underestimate the power of a steamy cup of tea. Steam in general has always been good or me, you can run a hot shower and hang out in the bathroom, or boil some water and breath in the steam.
Feel better!
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Post by SouthernCalGal on Jul 24, 2020 15:22:07 GMT -5
Dr. BiPAP Sachin, hoping you start feeling better soon. Just be as careful as possible and keep working with your doctors. Take care!
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jordy
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Post by jordy on Jul 24, 2020 17:20:16 GMT -5
Breathing issues suck... This is how I manage my issues and I hope some of it helps! I have on average 64%-89% useable lung capacity. Usually I can’t get enough power to cough things up so I rely on allergy meds, a nebulizer, and inhaler as well as having someone cup my back (percussion vests do the same thing but they’re expensive) and like darthoso said, gravity. While someone cups my back, I make sure I’m either hanging off the bed or couch or have pillows (a wedge pillow would work well) that help gravity move things out while they cup and I cough.
I hope you get some relief soon!
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