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Post by charlene on Jun 18, 2008 7:45:14 GMT -5
Recently, I discovered a few "new" articles while surfing.
A lot of progress is done concerning stem cell research and they found out how to grow back nerves in the spinal cord of mice.
So, do you guys still hope for a cure?
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Post by Deleted on Jun 18, 2008 8:58:23 GMT -5
They have been fixing mice for years. To bad I'm a dog. But I'm with Fubb. Hope is a two edge sword and the less played with the better. Time is better spent on something productive. I wasted years on woulda, coulda and shoulda.
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Post by thegoodlife on Jun 18, 2008 11:44:51 GMT -5
While I don't have spinal chord injuries, similar progress has been made with stem cells and MD. So I think this question still somewhat applies to me as well.
No, I'd have to say I don't hope for a cure. If one comes along that's great; but often too much effort is put in overcoming a disability, instead of just living well with a disability. I'm not saying this is the case for everyone with a disability, but for me I spent a lot of my time hoping and raising money for cures; agreeing with the social perception that there was something inherently wrong with me. To have a disability was thought to be a very evil thing that needed to be cured. Then I started getting into disabled rights, especially reading the literature and I started to develope a positive self concept in regards to my disability. This kind of changed my attitude towards my disability, and I thought, maybe it's not such a bad thing to have one. Nowadays I live with it, laugh about it, and enjoy it. There's no need for me to hope for a cure, but there is hope and efforts that should be made in making this world or continent more accessible to the disabled. So that's where my hopes and efforts are today. I'm sure I could create an argument for how this would make a better world for devs as well. After all, a more accessible world for the disabled means you'd get to see and check out more wheelers, since more disabled individuals would be encouraged to go out more. Am I right?
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Post by mrjefffurz on Jun 18, 2008 15:32:04 GMT -5
a cure,,,as in a cure for those of us with longtime injuries just isnt going to happen unless the next UFO that lands brings some kind of "star trek" technology that the alien lifeforms are happy to share (so they can fatten us up for food, no doubt)
BUT, i think that, given enuff money, in time a group of therapies will develop that will allow a damaged cord to be repaired,,,it wont be developed in the land of the free...but there are other places where research is happening...
i quit worrying about a "cure" ages ago but it would make me very happy if, during my lifetime, these therapies could fix the person who gets hurt the night before...
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Post by Deleted on Jun 18, 2008 16:41:33 GMT -5
Yeah Good, you make a point about accessiblity. I used to drive everywhere. Then I started working downtown and parking has become a friggen executive job perk. So I take the bus. I hate the bus. Not every bus is accessible. When ever I get on there is some one (I get off smack dab in the middle of rush hour) sitting in the assigned seats and all of a sudden I am a big asshole kicking someone out of thier seat. To get back at 'em I let everyone get one the bus first. They all give me this look like yer the broken boy get on. Nah, I tell them to get on first, hell I get a seat either way. But in my mind I am thinking, bitches...you can wait for me MWUAHAHAHAHAHAH!! BOW BITCHES BOW!
The train is much better I have my "fuck off!!" forcefield NO one bothers me. LOL even when everyone is ass to crotch people give me my space.
Asshole? Maybe. Bitter? Some days. Get a kick out of being a bitter asshole? Maybe sometimes.
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Post by Pony on Jun 18, 2008 18:12:37 GMT -5
I don't even want a cure...I'd lose my fat S.S. check, have to get a REAL job. Plus, I wanna be the last 'chair dude' for all the Devs...hehe Seriously, don't think cure is coming for me in my lifetime, probably right after I die!!! lol
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Post by BA on Jun 18, 2008 18:35:22 GMT -5
Asshole? Maybe. Bitter? Some days. Get a kick out of being a bitter asshole? Maybe sometimes. Ahhh, but you are a fine bitter asshole, however, Triassic takes the cake for being a dour cynic. I run a close second in the morose category.
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Post by matisse on Jun 18, 2008 19:29:46 GMT -5
Sure, I hope for a cure. I'd love to be able to play sports with my kids, and fuck my wife in the ass doggie style.
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Post by Triassic on Jun 19, 2008 3:33:02 GMT -5
AB, do i come off as a 'dour cynic'? huh. i sure don't see myself as such.
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Post by Pony on Jun 19, 2008 7:07:28 GMT -5
Ok, I want the cure...only coz I wanna fuck Matisse's wife in the ass from behind!! lol Just playin, dude!!
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Post by Deleted on Jun 19, 2008 15:58:50 GMT -5
ROFLMAO
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Phil
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Post by Phil on Jun 19, 2008 17:40:55 GMT -5
A cure would be nice. But I'm not so sure Matisse's wife would agree.
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Post by Ouch on Jun 19, 2008 21:32:31 GMT -5
Wow, I feel evil for laughing at Tony's joke...but that was situationally hillarious... ...well, 'the cure' is always seemingly like Tantalus trying to get that drink of water, but never quite getting it, even when he's at the top of the hill and there seems to be a ray of hope when he only manages to fall back down. Though in a far corner of that cobweb-filled skull of mine, I can't help but be optimistic and think one day the magic pill will be released, and upon swallowing it (lol, I'd choke to death on it, knowing my luck ) everything is like utopia-ville and happy ever-after, the end. Another thought that always comes up (and perhaps it's a little rather extreme)...but sometimes the tireless devotion to 'cure' things...seems to me at times, a little 'Aryan' in nature...I guess if I'm living life well enough right now...do I really 'need' a 'cure'? ...and while we're finding words to describe ourselves...I'm fancying the word melancholy...put my picture next to it, and perhaps we have a dictionary entry.
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Post by Claire on Jun 20, 2008 7:31:05 GMT -5
the tireless devotion to 'cure' things...seems to me at times, a little 'Aryan' in nature...I guess if I'm living life well enough right now...do I really 'need' a 'cure'? How very "social model" of you, Wind. I would never deny any single individual the cure for whatever ails them. Someone here once told me privately to make no mistake about it, disability is suffering, terrifying and depressing. I would never deny anyone the opportunity to be free of that. However, I can't help but think that the world would be a poorer place if there were no disabled people in it. I'm not speaking as a devotee here, but but just as a human being. I hate to use the dreaded I-word, so I won't; but you know, like it or not, it is often very true.
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Post by cunning69guy on Jun 21, 2008 0:30:22 GMT -5
Claire,
How very "presumptuous" of you to reply to wind that way!
I have no doubt that you ARE NOT speaking as a devotee, but it is patently apparent that you are speaking from the biased perspective of your BIID.
How dare you presume to put yourself in the place of wind or any other wheeler here. Although your "disease" is foreign to me, I bear no ill will towards those suffering from BIID just as I would bear no ill will towards someone suffering from schizophrenia, which is likewise foreign to me personally. However, when you chastise someone and presume to understand their situation when you have no first hand knowledge outside of "pretending" in your "unnecessary" wheelchair, you overstep the bounds of moral discourse.
I won't say anything further about your biased opinion, I'll just let your words speak for themselves:
Window to another world
by Claire - 12 May 2008
My wheelchair opens a window to another world. In that world, things are as they should be. I’ve dreamed about going there; obsessed about living there. That world was made for me; it’s where I’m supposed to be. It’s the real world. Here, in my dream world where I live, things are off-kilter, distorted. It’s constantly spinning around my head and the dizziness sometimes drives me mad. When I look through the window at the real world, and fix my gaze upon a clear objective, the spinning stops and my world rights itself for a time.
You look so happy
by Claire - 10 May 2008
Yesterday I wheeled into a Starbucks. The lady in line behind me said to me “You look soooooooooo happy!”
No wheeler voluntarily joined this fraternity, whether we accept it or not, however don't chastise those who would wish to eliminate what for, as I said before I cannot presume to understand, you desire and thrill in. Enough said.
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