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Post by Deleted on Oct 30, 2013 8:55:09 GMT -5
hey man
share many things in common
with my m.s.
I understand (as much as somebody else can)
hope the purge helped
now write a long positive list
of strengths and next steps
to get you over this funk
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Post by Ximena on Oct 30, 2013 9:12:47 GMT -5
Dave, as an AB woman I can't begin to "tell" you what to do. All I can say is in researching my novel (which features a man with Becker's MD), I spent a lot of time talking to men with BMD and reading their personal stories. I saw a lot of the theme of their being reluctant to move to a chair, because they felt like it was "giving up" like you do, but they all (for the most part) agreed once they did it they should have done it sooner.... Obviously, only you can decide what's right for you or what you need to do, but I don't think you should see using a chair as "giving up" at all. Maybe you could try a compromise, like using it for certain situations (maybe where you have to walk farther distances or where the terrain may be more unforgiving and libel to make you fall more readily, and walk for shorter/easier distances? Or maybe you could try a cane or crutch to help you keep your balance? (Not sure if that's a viable option or not for you.) I hope you feel better (physically and emotionally) soon. I'm not available, but if you need someone to talk to anyway, feel free to PM me any time.  |
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Post by Kiran on Oct 30, 2013 9:47:47 GMT -5
Hi, Dave! I felt exactly the same that you about the "wheelchair challenge". About fifteen years ago my brother-in-law who is a physiotherapist, spoke to me in a way similar to a curse: "If you don't work out properly, in ten years or less your destiny will be tied in to a wheelchair for the rest of your days!" As many people on the board already know, I am a wheelchair user since last January. In the begining I fought against it but as time goes by, I start to feel myself so much independent (at least in my mobility issues) that I was wondering why I didn't came to the wheelchair earlier... After all, I used to fall many times, but since I had began using the wheelchair, no falls anymore! About your bad romantic experience all I can say is: Keep going and don't give up! I'm sure you are a good man and someday you will find some girl who fits perfectly for each other!  |
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Post by Kiran on Oct 30, 2013 10:10:03 GMT -5
thank u kiran, about the wc is what everyone says here in person. I think 4 me it is all about angelea and how I need 2 let go because the love of my life left me 4 a guy who is capable of many things physically and here I am less capable as time goes by. it just feels like I am losing everything but I know thats not true. I felt this "capable issue" in the same way too. When I was younger, all docs I had visited, told me: "Your CP is a non progressive brain disease, it is stablelised and won't go worse" What all docs forgot to say to me is about the accelerate aging problems that we people with CP have. They didn't told me nofhing about my killing back pain, as well... Despite my griping way of express myself, today I know we can really achieve great goals to our life! Don't let the way the others see you determines the way you act. Ultimately, we are the ones in charge of the direction that our lives take. So, Im saying this one last time: Don't give up of your dreams, because nobody can dream your dreams on your behalf! |
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Post by devman1950 on Oct 31, 2013 3:09:46 GMT -5
Dave, i understand your thinking but I also think you are making the right choice to get the chair for no other reason than the pain issue and the safety issue
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Post by Deleted on Nov 4, 2013 13:30:53 GMT -5
Hey Dave, don't really have any good advice but just wanted to tell you I read your post and hope you are out of your slump soon....we all get those moments when everything just seem to suck....eventually there is a light at the end of the tunnel and I hope that will be the same for you!
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Post by finally on Nov 4, 2013 14:49:41 GMT -5
Hi Dave, I read through your post and I´m glad you posted. I know, it "helps 2 not only get it down in writing but also 4 someone 2 actually read it" as you put it. Even though this is all virtual, I feel a connection to you and many other people who wrote threads and posts, and I´m thankful for this board for these experiences.
I´m sure it will not be easy to find THE woman who is THE match for you. It´s not easy for anyone, I guess, man or woman, disabled or not - but I´m sure for disabled people and dev people it´s even more difficult.
Then again, I believe things happen the way they are supposed to. That has helped me a lot to take life "as it is" with all the challenges that I´m confronted with.
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