Talking to Dr's and specalist about BIID Votee. *help*

[Skrappy]

need to say this first: I am autistic, *diagnosed with aspgergers early in life.* one thing i have a hard time with in general is communication..

for myself i have a incredibly hard time talking when stressted, intimated easily it goes on, so i could use some emotional motivation help. maybe?


im starting physical therapy my BIID is part of the reason im going into physical therapy. 
*have body pain from my neck along arms all the way do to the wrist and back. then down my back and especiall on my legs!
the legs are part i want removed so i can hopefully move a little easier* 

Im generally un-sure what to do besides wait for PT and hope i might get a ok down the line?
*not going to happen in a year at least in my mind.*

[ruetheday]

Sorry that you're going through this.

The healthcare system only approves the most conservative treatment available. That means an amputation for BIID alone is pretty much off the table.

I have no doubt that you're experiencing some pretty intense discomfort. If the cause is actually BIID and nothing else, then only conservative approaches like PT and mental health / psychiatric treatments would be approved.

I have severe mental illness, and I work in the mental health field. I know there is a ton of stigma, but there is absolutely nothing wrong with trying to better your life through that route. If BIID is causing you pain, then your experience of pain is real, but nobody is going to approve a leg amputation for something that is happening in the brain.

I'm also in no position to say for sure, but maybe the issue with pain isn't all BIID. Maybe there's some other health problem, peripheral nerve injury, or pain disorder involved.

Some people might not like the the idea of mental health treatment for BIID. I don't want to offend or insult anyone, so I'll make a few points to that: 1) The systems approach of only approving conservative treatment isn't my idea, I'm just sharing what I've learned from experience. 2) Again, I'm coming from a perspective of zero judgment for mental health issues. Mental health issues are similar to amputations for me - they're just a part of everyday life that I'm used to dealing with. Hell, I think we should all be prioritizing mental health. 3) People have a right to desire changes in their own bodies. I'd like to lose weight and grow a hand, and I know plenty of people who want to change genders. The desire for bodily change is never, itself, a mental illness - but they can be related. I have severe anxiety and depression, and the fact that I'm unhappy with my body is related to that, as is social stigma. People in the trans/LGBTQIA+ communities also deal with anxiety and depression at disproportionate rates. So when I say that doctors might recommend more mental health treatment, I'm NOT suggesting that BIID is "crazy" or anything. It might, however, be contributing to anxiety, depression, and somatic experiences though - and those are things that healthcare workers would be wise to consider, if you are experiencing suffering.

[Skrappy]

theres more than just the BIID for the pain.

born with weak bones bad joints.
physical therapy is going to be interesting.

[outofsight]

Same here, both managing the BIID and my degenerative joint disease (early onset). My BIID is not concentrated to my joint/bones area but, in general, attending counseling sessions does help me a lot with coordinating everything in a safe way, I find. From the BIID forums that I read regularly, I'm aware of pain/numbness issues for many amputation-focused Biid-ers, even before they would attempt any surgical change. The human brain and body are (still) such a mistery.

Love, and a wave of the (imaginary) white cane,
Josh

Have an awesome weekend , by the way.

[Skrappy]

so updates i guess...
its not just BIID there's chronic pain but that is just the cherry on the cupcake of mental and physical fun!.

but from finding out i need all my teeth removed and have no idea how to get that done eventually and needing dentures..

but my body basically shut down. in 2023 my childhood best friend who i secretly loved passed away.. *met in special ed classes and i never told him what i thought about him once he came out, followed by a tornado of emotions that led me my body to basically shutting down physically again..
happened once before 7 years ago almost..
1st was 7 years 2nd was now over a year ago..

Im dealing with my next hurdle and it's huge..
convinving my Dr's to help amputate my feet so i can learn to walk with help before i need to learn to walk all over again with prostetics..
*i made another post that list details and asks for help..*

things are just getting harder while i still can't get outside to apply for disability. so now fustrated on top of scared after getting over being SAD..