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Post by E on Oct 6, 2008 7:54:48 GMT -5
Fubb,
It sounds like you had a crappy experience. That sucks. I'm sorry.
But I think Michael is prudent in getting the best "bang for his buck." Let's face it: his $650/month is not going to cure SCI, but it did, along with lots of hard work, grant him additional mobility. If he was donating that money to SCI research, he'd be sitting around... waiting.
There is one upside to rehab. Rehab is my only option for improvement. I don't have a broken cord to fix. There will never be a cure for me, personally. I am how I am. If I want to improve, some kind of rehab/PT/OT is my only option...
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Post by mrjefffurz on Oct 6, 2008 13:00:58 GMT -5
some may call me a passimist,,i prefer realist,,,for we sci's there is no chance in hell that there will be any therapies that will change our particular conditions,,,period,,,however,,,we know what sci life is all about and if you have 1 ounce of compassion within supporting stem cell research is a no-brainer,,,i care about the kid who gets hurt on prom night,,,the father who gets hurt working to support his family,,,even the gang-banger who gets shot on a saturday nite,,,i sincerely want cancer to be beat,,,i have type 2 diabetes well controlled,,,but i know kids with type 1 that could be cured with a jump start that stem cells could someday provide...my freinds, look deep within your conscience and see if you can consider supporting those who will try to adequately fund stem cell research,,,save someone down the road from having to fight the fight that we do every minute of our lives,,,
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Post by rollingbear on Oct 6, 2008 14:01:02 GMT -5
You are kidding right. No Chance in hell therapy will change our conditions. We have gone from paras living an average of 18 months post injury, quads 9 months post, to living a normal life span with hardwork, vigilance and of course luck. Research has improved our lives immensely with innovative new medicines, equipment and life styles.
The FES(Functional Electrical Stimulas) bike is a good example, true it won't make some of walk out of there; but for me, even after 35 years, I find it has improved my balance and posture while sitting, makes the bowels and bladder function better and has done wonders for weight and circulation.
Thirty years ago we were riding in 55 lb. chairs calling them ultra light chairs. In the hosp. docs asked if the newly injured person wants a sphinctotomy(sp) or supra pubic without any consideration if we actually needed one or not. We all wore legbags because Cathing was too dangerous in their opinion. Research showed the opposite.
I do agree that more research dollars are needed for those that are injured. We also have to have research and therapy dollars for our aging disabled population. We are living longer than any other Disabled population before so therapies and research are needed to if anything, keep us healthier as we age and bodies deteriorate.
I for one refuse to send money to places like the Chris Reeve Foundation. For every dollar spent, a fraction of it goes to the actual research areas. Most goes for more fundraising and outrageous salaries of the administrators. Ever try to get a grant or scholarship from one of these foundations. Try to find the proper paperwork or section for requesting assistance at their website then compare how easy it is to contribute to them. I'll stick to my local foundation that provides 100% of the funds for scholarships and equipment for young disabled children and adults.
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Post by Ouch on Oct 6, 2008 19:21:15 GMT -5
lol, fubb, about the financial comment at this point, I think it's more like 'mono'  |
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Post by mlosee on Oct 7, 2008 10:59:22 GMT -5
"The good news is that the moment you decide that what you know is more important than what you have been taught to believe, you will have shifted gears in your quest for abundance. Success comes from within not from without" -Ralph Waldo Emerson
This quote can be applied to anyone. Doctors told me I'd never walk again. When I told my doctor I was learning to ambulate in leg braces he told me it wasn't practical and that I was going to "pop a rod" out of my back, referring to the titanium fusing my spine. Sometimes you have to redefine your own reality. I am not a victim of circumstance, I have purposefully made my life into what it is today. I love my life and I know I am incredibly lucky. Just wanted to throw that out there. We have all shaped our lives into what they are today.
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