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Post by dystrophian on Jul 16, 2012 20:28:50 GMT -5
Hi, I'm 22 and have Muscular dystrophy. I have a ventilator with a trache and feeding tube. Long walks on the beach aren't my thing, but I give awesome wheelchair rides! Lemme know if anyone wants to chat.
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Post by Ximena on Jul 16, 2012 20:59:45 GMT -5
Hey, dystrophian, welcome to the board! I've actually been doing a lot of research lately about the different types of MD. I'm guessing DMD? Would love to chat with you some time. Feel free to send me a PM  . |
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Post by dystrophian on Jul 16, 2012 21:16:32 GMT -5
It's not actually DMD, they're not sure what kind it is.
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Deleted
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Post by Deleted on Jul 17, 2012 3:28:30 GMT -5
Welcome!
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Post by Pisti on Jul 17, 2012 3:29:09 GMT -5
Welcome!
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Post by lavly on Jul 17, 2012 5:43:22 GMT -5
welcome
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Post by old_dumb_grid on Jul 17, 2012 12:16:48 GMT -5
Welcome!
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Deleted
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Post by Deleted on Jul 17, 2012 16:22:50 GMT -5
Welcome to the board!
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Post by dystrophian on Jul 17, 2012 18:28:37 GMT -5
Thank you, feel free to pm me!
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ej
Full Member
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Gender: Female
Relationship Status: In a relationship
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Post by ej on Jul 18, 2012 8:17:31 GMT -5
Hi dystrophian! Welcome to the boards!  |
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Post by weallgotwheels on Jul 18, 2012 10:31:07 GMT -5
Dystrophian, they won't pm you until you post a pic and you probably have to be cute too! Welcome to the board!
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Post by Ximena on Jul 18, 2012 10:34:07 GMT -5
That's not true, WAGW...!
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Deleted
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Post by Deleted on Jul 18, 2012 16:34:00 GMT -5
That's not true, WAGW...! I agree, that isn't true. People need to get to know you through participation in the threads. Sense of humour, out look on life, intelligence, motivation for being on this site etc...... |
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Post by dystrophian on Jul 18, 2012 18:11:17 GMT -5
Dystrophian, they won't pm you until you post a pic and you probably have to be cute too! Welcome to the board! Maybe I could be persuaded... or bribed |
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