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Post by dystrophian on Nov 3, 2012 19:11:20 GMT -5
So because I've been gone a while I'll do this again.
I'm 23 with Muscular Dystrophy and a ventilator, but that doesn't define me. I got dealt shitty cards and I decided a long time ago that I'll play them as best I can.
I write, I do stand up comedy, I protest against the government and I've been fighting for my independence for 3 years. I don't give up because I need to make something of myself. I need the world to know that I was here. I need to do something so amazing that people stand up and take notice. I think because deep inside I'm still an insecure little boy screaming out for acceptance. I want respect, not pity. I want to be viewed as equal and remembered as someone that left the world better than it used to be.
Most of all though, I want to find someone. I want someone to cuddle with on cold nights. Someone to kiss when she looks sad. Someone to risk everything for. Someone I can make happy.
I don't make much money and I can't protect you in a zombie apocalypse, but I'll give you everything I got and I just hope that that's enough.
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Post by Ximena on Nov 3, 2012 20:28:03 GMT -5
Nice to see you back, dys.
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Post by nocturnaldev on Nov 3, 2012 20:36:57 GMT -5
Welcome back!
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Post by janewheeler on Nov 3, 2012 20:54:12 GMT -5
Way to put yourself out there -- you sure have passion, and that's pretty awesome
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Post by old_dumb_grid on Nov 3, 2012 22:10:52 GMT -5
Glad to have you back!
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Post by Gaby on Nov 3, 2012 22:26:57 GMT -5
Eeeee! You are back! ¡Bienvenido!
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Post by Kid A on Nov 4, 2012 2:29:22 GMT -5
Welcome back, D!
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pjdukegavin
Full Member
banned
Posts: 136
Gender: Male
Dev Status: Pretender
Relationship Status: Married/Domestic partnership
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Post by pjdukegavin on Nov 4, 2012 7:19:40 GMT -5
Which country are you in? Why does that government need to be protested?
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Post by hanabanana on Nov 4, 2012 12:58:13 GMT -5
*huggles*
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Post by dystrophian on Nov 4, 2012 17:50:38 GMT -5
Which country are you in? Why does that government need to be protested? They cut my nursing hours because they say I'm not sick enough. I'm in California.
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Post by Ath on Nov 4, 2012 23:52:26 GMT -5
Welcome back.
Do you live with parents, or? Can you not appeal? Or apply again showing the result of their cutback. Always always exhagerate (spelling). Establish a contact with your decionmaker and demand one that has knowledge of your condition. Get an advocate or your doctor to speak for you. Even periodic vent users should have 24 hour care if they depend on others to plug it in etc. This makes me so angry.
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Post by dystrophian on Nov 5, 2012 0:48:22 GMT -5
Yes to everything. We appealed, got doctors letters and now suing because I lost the appeal. They don't care what doctors say.
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Post by alexa2010 on Nov 5, 2012 3:17:59 GMT -5
Welcome from Germany! I like your attitude!
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Post by Ath on Nov 5, 2012 8:16:58 GMT -5
I dont see how they can stop you from moving. Surely they took into account that your parents are helping you. Register at a different adress and they have to reconsider.
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Post by britishtetra on Nov 5, 2012 10:00:42 GMT -5
My dad lives with me mate, mom helps to. I was in the position when I was 18 to live with a carer but my dad told me if I ever found anyone he'd leave me to it. In 22 years I never found no-one. Yeah I know it's a shit, but that's life, at least you get the sun there mate, it's freezing here. Had my flu jab last week, blimey do I ache,
Pete,
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