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Post by Deleted on Aug 23, 2014 2:58:33 GMT -5
I am an incomplete L-2-3 paraplegic here...i got a lot of function back over 12 years post injury but also have a lot of pain and i do get spasms a fair amount...i hate the meds so try and ride them out. I have heard that some AFO's will really help keep the spasms in check any other paraplegics have experience with them?
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Post by Utahquad on Aug 23, 2014 15:08:39 GMT -5
I am an incomplete C3-C4 and before my baclofen pump I would get spasms whenever anybody would touch me. I wouldn't say they hurt but were really uncomfortable would be the best description. Some were so bad it would affect my breathing for a second or two which was always fun.
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Post by lars on Aug 23, 2014 15:19:29 GMT -5
Funny that it was mentioned, but I've never had my legs spasming either.
Well, there was one case involving a very brutal bicep exercise at the gym, apparently my support arm was pressing some trigger point on my thigh or whatever. The other feet didn't quite agree to stay on the footrest as I wheeled myself back home, but that's all the drama there was.
Lucky bastard, knowing some of the spasms that my quad teammates have.
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howiroll760
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Post by howiroll760 on Aug 23, 2014 19:15:13 GMT -5
I'm a t7/8 incomplete with sensation so when I sit for long periods of time I will actually make my legs spasm, and it feels like a nice big stretch like when you yawn and stretch.....just with a lot of shaking lol.
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Post by Hopper on Feb 9, 2015 15:38:53 GMT -5
They barely hurt unless it's cold. They are irritating though. That said, spasming as your body reaches 'the point of no return' as it were during certain pasttimes is pure euphoria.
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Post by pumafreak on Feb 9, 2015 15:52:35 GMT -5
The spasm don't hurt at all. Most of the time they are annoying. They happen at the most inappropriate moment. Once I was being introduced to a new work colleague, as I went to shake her hand, my right leg spasmed at the same time, and I ended up kicking her in the knee.
The one good thing about spasm, they do help in stretching out your knees and hips, especially when I'm sitting all day.
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Post by rebel6842 on Feb 10, 2015 13:49:46 GMT -5
The same way as wheelchairstud84, I also have spasms from time to time, but in my case they are never painful. Just cause some embarrassment when it occurs at inappropriate times such as, when I'm eating and spasms make me drop the food or beverage from the table. What really bothers me is a typical condition of cerebral palsy known as "hyperreflexia" consisting of overreactions to certain situations such as loud noises and sudden that might let me spooked. The most times I suffered falls, at the time I still didn't use my wheelchair was because of this condition. So, THAT'S what it's called-I always knew it as just "startle reflex". One of the most embarassing parts of CP is to have people apologize for "scaring" you when they did nothing wrong...
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mcthomas
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Great day ! Live is too short lets smile !
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Post by mcthomas on Mar 6, 2015 14:50:21 GMT -5
...the spasms, particularly legs help with circulation (muscle tightening/relaxing) which pump blood around and also aid the distribution of calcium which strengthen the bones so less likely to be brittle and snap easy. .... I'm D-10 at first but my level got improvement to kind of D-12 and I was supposed to be incomplete but: after few years these have appeared. In my case is painful the most of times. They comes normally after few hours of work or when Im tired. It comes sometimes when I do transfers. There is other kind of spasms when I go to bed but is good to feel even the pain because that remands me the feeling of a part of my legs and relax my muscles. I did explain in other post that I have nice reactions (Kind of spasms) I do cause by massaging the sole of my feet. That brings me erections even if they are not complete or good enough.
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Post by mealsonwheels on Mar 7, 2015 13:48:08 GMT -5
Mine are just annoying and usually only start if I am positioned wrong in my chair. They don't hurt, but if they go on for a little while, I will feel tired, like I had just done I heavy workout.
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Post by Kiran on Mar 7, 2015 20:29:29 GMT -5
The same way as wheelchairstud84, I also have spasms from time to time, but in my case they are never painful. Just cause some embarrassment when it occurs at inappropriate times such as, when I'm eating and spasms make me drop the food or beverage from the table. What really bothers me is a typical condition of cerebral palsy known as "hyperreflexia" consisting of overreactions to certain situations such as loud noises and sudden that might let me spooked. The most times I suffered falls, at the time I still didn't use my wheelchair was because of this condition. So, THAT'S what it's called-I always knew it as just "startle reflex". One of the most embarassing parts of CP is to have people apologize for "scaring" you when they did nothing wrong... You're absolutely right, rebel6842!
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Post by britishtetra on Mar 9, 2015 7:45:04 GMT -5
I've just noticed this question on spasms and I thought I'd give you my intake on it. Certain spasms in certain areas bloody hurt!. A side spasm say when you lay in bed and your back moves to the left and your hips to the right.. That hurts! Also if you've been in your chair awhile, a spasm can tell you if something is wrong, say a spasm in your leg, sock to tight, spasm in your foot, in growing toenail. Plus a spasm can help you if in my case my arm comes up when I'm in bed at night. I can make myself spasm to bring my arm down to my side. Stomach spasms hurt to, mainly due to super public blocked, happens sometimes. I'm off to see the neurosurgeon Thursday about my syrinx, had it twenty years now, going to need draining I think. My sore is less that 1cm deep now, with some luck I'll be in the garden with the sun on my face in the summer, love that, then again I live in England...lol
Pete in wythall
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Post by spurs2000 on Mar 13, 2015 19:07:05 GMT -5
spasms do not generally hurt, they can be very frustrating particularly when my legs go crazy and bounce continually. Spasms can cause injury and certainly I've had a few which have literally thrown me out of my wheelchair often banging my head which did hurt. Stomach spasms are also very awkward as they affect being truly comfortable.
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Post by Hopper on Mar 23, 2015 11:22:27 GMT -5
The startle reflex associated with CP is a bugbear. Not physically as such, but the reactions to it. Mind you actually being scared can be severe too.
Like when I went on a date with a girl to see Harry Potter 7a.
Whenever that goddamn snake lunged at the camera, my coke and popcorn went all over her.
She was not amused. Not even when I poured the remains into my lap to even the odds, her freinds were cooing and giggling at least.
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Post by Hopper on Mar 23, 2015 14:30:40 GMT -5
Did it start a Mexican wave?
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jmpt
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Post by jmpt on Mar 23, 2015 14:41:14 GMT -5
It varies a lot from person to person and it seems kind of hard to explain
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