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Post by Lazy Jenny on Feb 26, 2007 6:07:21 GMT -5
You got a lot of responses about being independent.
Maybe you aren't getting many responses because there aren't a lot of people on this board who can afford about $10,000 US out of their own pockets to go flying off to what is still essentially seen as a third world country for unproven medical treatments.
You're feeling really up about this treatment, and good for you. But just remember there are people who aren't in any situation to do what you just did.
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Post by andyc251 on Feb 26, 2007 13:29:00 GMT -5
Im going to preface this by saying that I REALLY DO hope you get some results and find what you are looking for, and that I admire you for giving it all a go.
But dude, your attitude stinks.
It was only a couple weeks ago that you asked for help becuase, by your own admission you had become lazy and depressed, just lying in bed and letting your mum do everything for you, and everyone supported you and gave advice on how to make things better.
And now you start attacking people again, claiming that it is you that has the positive attitude and mind just because you are going to see a doctor, even though you spend your days lying in bed, doing nothing and feeling sorry for yourself.
I know for a fact that the reason no-one commented or asked questions is because we have all heard of 'cures' like this before, we have looked into them ourselves, do you really think that if we could go and get a quick operation to be walking again we wouldnt.
It is too easy for anyone, especially a doctor, to claim that they have found a cure, that they can fix you and to bring out some guy as 'proof'. The guy you talked about when you mentioned this therapy, that was walking again after a month or two. Well as soon as I read that it made me think that his spinal cord hadnt been permenantly and seriously damaged in the first place, maybe damaged and swollen enough to paralyse him until the swelling went down, so how do you know that it was the doctors 'cure, or simply the swelling dissipating and him recovering just as he would, with or without the 'cure'.
Like I said, I hope, wish and dream of being able to go see a doctor and him fixing me, but until I see something that proves the claims then Im gong to remain extremely sceptical and treat each new claim of a 'cure' with a huge dose of salt.
If this clinic was truly performing such amazing work then it would be well documented and reported on the front page of every paper in the world, there would be clinical evidence of people with long term, complete and chronic sci injuries before and after surgery, showing vast and indisputable improvements. If this clinic was really curing people of sci's then other clinics would be copying them and making millions of dollars from the process, a cure for sci would be a perfect business model for success, so many people need it, and not one of those people would choose to be in the wheelchair.
So dont try telling people that actually live their lives to the fullest each and every day, instead of lying in bed feeling sorry for themselves, that they arent positive just because they hold a healthy amount of sceptisim about the latest rogue doctor claiming to cure sci, when they know it to be pretty much the closest thing to false hope.
If I prayed to something then I would pray for you, I really do hope that you get some benifits from this clinic, and I would really like for you to let us know how it all goes, like I said, we are sceptical and sceptics always want to be proved wrong. Every sceptic here dreams of being proved wrong!
But I really do hope that at some point you come to terms with what has happened to you, that you understand that you cant live your life by waking up each day expecting to be cured and allow yourself to become depressed when there isnt one waiting for you. I admire you belief and detirmination to walk again, but you must understand that lying in bed and feeling sorry for yourself isnt ever going to bring you closer to that goal. Even going to a doctor isnt enough, you need to be active everyday, build strength for the months of physio that it would need just to recover from not walking for years. Youre not going to just wake up from a surgery and jump out of bed, no matter how miraculous that surgery is.
If a cure comes along then that is awesome, but until it does get out, live you life, dont lie there waiting for it, it might well never come.
I really do hope things work out for you, unfortunately I really do doubt they will, so sort out your crazy attitude and dont ever feel sorry for yourself, you are alive.
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Post by E on Feb 26, 2007 13:32:06 GMT -5
We're often barraged by false hopes and magic cures that turn out to be much less effective than we imagined. I am curious about your stem cell experience. If I had to guess, though, we're waiting to see how it works for you. If, in a few months, you have a fantastic recovery, I'm sure you'll generate some serious interest.
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Post by Deleted on Feb 26, 2007 14:09:13 GMT -5
So I take it there was an original post that was cowardly deleted before anyone with the nerve to really let you know how miracle cures make a guy feel eh?
Yeah well what Andy and E said but not so polite.
You want to know something really bad? I quit smoking , umm well cigarettes...anyways. One of the hardest things a person can do. Harder then kicking heroin some say. Well I quit last May. I don't wake up wanting that first smoke of the day. Well thirteen years later and there are days where I STILL wake up and give the ol toe a shot, with every ounce of concentration these days when nothing happens I don't feel depressed, I don't feel like sparking a joint. I just think oh well...and then...THAT f*ckING DOG TOOK MY SOCKS AGAIN!
Reality will settle in and take a triple coil steamer in your corn flakes all over again. oh and what does two degrees mean when you don't have the sac to even have push rims on your wheels?
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Post by xxx on Feb 26, 2007 15:05:45 GMT -5
Ever wonder why 28% of medics Aren't practicing in India? it isn't the first place you think of in terms of cutting edge medicine...not to take anything away from what good things you have going there, no doubt you have some very intelligent doctors.
There are many isolated trials in various countries and whatever with stem-cells NOTHING conclusive yet, If anyone would know it would be us who are up to date on this sort of thing for personal and professional reasons, besides as someone said already, it would be front page news worldwide let alone in the medical world...
You mentioned over and over again in your original post that it 'might not work' but you were giving it a go none the less(which is great!), just as long as you remember doctors are human too, we try things blindly based on knowledge and in this case inexperience in the hope to gain results. I think that you know deep down that your docs aren't promising you anything more than hope either.
They say that recovery is 90% up to the patient and 10% up to medicine personally i think its way more up to medicine but anyway- 90% implies the persons state of mind, physical condition etc , so you being positive does count somewhat.
You haven't made any attempt at independence before this (according to your posts about you mom always helping you) so it would be wrong of you to expect that you can sit back and let medicine do all the work for you, and when it doesn't work, you'll blame all the clever Dr's in India and people on this board for being negative and my guess is never considering yourself at fault.
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Post by yyy on Feb 26, 2007 21:25:19 GMT -5
Birju, please, for the sake of the people in your life, seek competent professional psychiatric help. Your continued cries for help on this board are wearing us out and growing quite old. I can only imagine how weary your close family and friends must be growing.
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Post by BA on Feb 26, 2007 22:03:43 GMT -5
i dont want to spend my life playing wheelchair sport, or smoking weed or drinking my self to death..... I know peopl have less knowledge abt other countrie in that part of th world, thnk god i went thru an excellent education system and ended up with 2 degrees..... Patel, I wish all the best for you. I really and truly do, but you have absolutely Zero acceptance of your current situation. Please tell me, since you are a para, why the rehab centre you went to didn't whoop your butt out of bed, get you in a decent chair, teach you how to manage all of your own bodily functions IN PREPARATION for your stem cell transplant? ?? I am a Registered Nurse and have been for over 20 yrs. I work with many nurses and physio-therapists from India (both north and south but primarily trained in Orissa and I add that so that you know that I am speaking the truth). They have left to come here because the modalities in India are out-dated and the rehab system is archaic. This is a cultural thing because in your country, if you are disabled, you have very little in the way of rights, so the attitude is "no point in treating you if you are going to be useless". I believe that the thinking in India is black and white, you are either "cured" or "useless". I know for a fact that retarded children are considered shameful to their family and would NEVER be sent to school for any education. In this country, Western Europe and Austrailia it is OK (hear me) really OK to be a person who uses a wheelchair. With your 2 degrees, are you currently considered employable in India? You most certainly would be employable in the USA. What percentage of India's SCI population works? Thanks Andy for your MOST intelligent post.
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Post by hottiedevo on Feb 27, 2007 0:11:00 GMT -5
I tink sumon is jealous, EIP i tink mellowcanuck NVs ya 4 havin 2 degrees. I shaw da below da belt shot abt wheelin the chair. mellowcanuck ya r a cheap SOB. lozaaaaaaaaaaaar EIP I personally lov ya da way ya r, but woud lov to c dis work 4 ya love Hottie_devo P.S. check yar message, seding ma email addy to ya? do ya hav myspace? ??
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Post by hottiedevo on Feb 27, 2007 0:39:47 GMT -5
ya dnt hav 2 b so diplomatic, da man is a perv he taks abt all nic shit on her. I got 2 tak to him once, he is a fithy pig, dont feel bad 4 that pig. mellow mellow ya fukin dirty fellow Thanks devo for defending me....thanks for the email address...i will get in touch with you for sure... abt Mellow, its cool i dont take guys lik him seriously....if a dog bites you, would you go and bite him back? I think he is just too frastrated abt not smoking...let him have his fun...but you shouldnt be calling him a loser....i can understand what he is going trough. atleast god will bless me for being a channel for him to let his anger out. I know smoking does taht to him, i dont know where he got the thing about th wheel chair, but he try to hurt m by saying that, but that didnt work...mind is stronger i guess we should go there and juice him up with some positive energy......maybe shave him and cut his hair...hahah...that would open his mind....anyways dont worry abt him...i am not worrid, his existnc in the world doesnt do anything for me, so then why would his comments bother me o
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Post by xxx on Feb 27, 2007 2:52:09 GMT -5
you are an attention seeker, its clear for everyone to see, you've already been given more attention with regards to this topic than it actually warrants.
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Post by I Love You EIP on Feb 27, 2007 3:57:02 GMT -5
it dsnt matt3r tht U try 'n type lik3 ths, its s0 obvios tht 'hottiedevo' is jst U tryin 2 get moar atenshun!!11!1 WTF is the matter with you 'EIP', grow the hell up and stop being such a pathetic waste excuse for a man! No-one fucking likes you here, and purely because of your infantile rantings and obviously sad attempts for attention. IF you werent such a compete idiot and could actually relate to anyone then maybe people would take you seriously. What sort of person needs to invent a new 'hottiedevo' to try and make people think that there might actually be someone in the world that could be remotely interested in them. you are just a joke to us here, grow up or GTFO. im fairly sure, and willing to bet that even if you are really having any kind of treatment then it was surely the idea of your family, and with the financial backing of them too, to try and get you out of the house and away from them for a while in the hope that you might actually return less of a burden to them at long last and stop being such a pathetic baby, striving for attention all the time. i really cant wait to see how you reply to this, because it has become annoyingly obvious that you are incapable of having an intelligent and grown up conversation, nevermind anything as complicated as a discussion or debate. yes i am posting as a guest, do you know why, because i am not interested in your immature replies or even attempting to discuss things with you. you have made more than obvious in previous posts and threads that you are incapable of anything other than juvinile and, quite frankly, retarded thoughts and opinions. haha, honestly you just make me laugh so much, its like you are just a character from some kind of comedy sketch show. Unfortunately (for you) you are the only one who cant see the joke. but thanks for the ;D ;D ;D ;D ;D ;D anyway.
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Post by Hmmm on Feb 27, 2007 8:32:21 GMT -5
Hey people, I have been so lazy, that i have been very dependent on my mom. I want to be very independent. YOu know i need to learn how to do everything by myself. Is there a site or place where i can learn everything...like tranfers and stuff... please if anyone have any info ...please let me know my mom is so sweet, she would be happy to see me independent. to be honest we all have strong hope that i will walk again soon...and that what made me more dependent....just in our mind it has been that no need to work on it...i am gonna be walking soon....but now 4 years have passed....i still have the faith...but i have to be practical at the same time..... problem is that we dont have much rehabs here....most people dont even know about the spinal cord injury...the just ask me how my legs are bcos they feel someing wrong with my leg.....i get so tired here...everytime a person meets me...they ask me " how is your health" or can you move your legs now....its f*ckin annoying....people have good intentions...but always remind me that i am disabled
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Post by Birju on Feb 27, 2007 8:51:54 GMT -5
Guys, Thank you very much for having me on the site, but I guess i will say good by to everyone. Well my main aim was to try to help others....but it all went wrong. Anyways i dont feel that this is the group for me, i dont think that i can relate well. This is a forum where people have the freedom of speak....but many a times i have seen people ganging up on me. And i dont think that most of them know me well enuff. Well I will move on from here, i just dotn feel like confronting anymore....anyways if anyon has a problem with me...feel free to get in touch with me at patelville@yahoo.com I have great things to do, i cant degrade my standard by arguing with people taht i dont know or who dont know me. Anyways it was nice experience...but i would rather join a forum that lets the people to express openly. I dont know what happened to freedom of speech? ?? I guess there is nothing like that..... Anyways i hope you guys live your life the way you want....and i would do the same.
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Post by Cant Be Bothered on Feb 27, 2007 9:08:21 GMT -5
I think you'd be hard pressed to find a place that is more open or supportive than this one. People have tried to help you whenever you have asked. You'd be wise to seek help for your personality disorder.
So, goodbye. Don't let the door hit ya on the way out.
(Oh, and goodbye to Hottiedevo as well)
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Post by bye bye EIP on Feb 27, 2007 9:29:19 GMT -5
xxxx..... nothing wrong in getting attention, dotn be jealous...you can do that too....well your comments are read by mean and i just laff it off...who know who you are.....u could be a crack smoking whore....or a bastard child that was abandoned by her or his parents i hope taht stings ya you are an attention seeker, its clear for everyone to see, you've already been given more attention with regards to this topic than it actually warrants. Oh I'm so broken hahaha! People here were ONLY trying to help you and give you some advice. I think that such intelligence as yourself with no less than TWO degrees(even though they were probably via correspondence through the post majoring in cake decorating no doubt) should go find a more stimulating academic forum somewhere else. Oh yes and take hottie-whatever you like to call her with ya, I'm sure you'll need some back up !!
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