krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 27, 2018 21:52:14 GMT -5
Awesome! I have family in Auckland! It's beautiful there!
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krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 27, 2018 21:49:10 GMT -5
Welcome!
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krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 19, 2018 2:49:24 GMT -5
A bit of a tangent, but what do you think of the awareness campaign 'smash SMA' mentioned in the news story? It seems iffy to me in a couple ways: a) 'smashing' is pretty violent imagery for something describing someone's body, and b) the activity done to raise awareness is something that a lot of you might not be able to do, so it's excluding you from something being done for your benefit c) smashing random objects doesn't really have anything to do with SMA and doesn't teach people anything about SMA I'd be interested to hear what your thoughts are about that. Do you wish they'd used a different campaign? Or am I seeing problems where there are none? This appeared to me as SMA's attempt to copy the viral success of the ALS ice bucket challenge. Basically attaching your cause to some sort of stunt, and using people's narcissism to make it go viral. Imo, kind of silly/dumb, but if it works... meh...
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krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 19, 2018 2:41:05 GMT -5
How'd it go? I'm currently in the process of getting approved, and waiting for the University of Washington to begin dosing people. It went unexpectedly smoothly, including the entire application process. I was the 12th adult to be dosed and treated by the same team at the same facility so they’ve gotten pretty good at the entire thing. From my initial consultation to my insurance approval was just barely a month, and then it was less than 2 weeks until I began the loading doses. The procedure itself was also pretty easy. I had it done under a CT scan, as they were planning on going through my side because of my fusion. To both of our surprise, we realized during the scan that my my fusion ended short of the spine, and there was room below the rods to do the injection. Since yesterday I’ve felt pretty fine, very mild headache and soreness but definitely not bad at all. That's great, man! Congratulations! I hope mine goes that smoothly! Happy for you!
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krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 18, 2018 4:51:59 GMT -5
Your boy just did some very expensive drugs How'd it go? I'm currently in the process of getting approved, and waiting for the University of Washington to begin dosing people.
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krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 17, 2018 21:40:51 GMT -5
******************************************************************************************************************** The purpose of this posts is strictly educational, with purely friendly and noble intentions and have nothing in common with any real person or experiences from my recent past. It is rather intended for a younger audience, since I have a strong felling that older boys around, have already developed their own pretty good ways around girls. ******************************************************************************************************************** You have spotted her in the masses. There is something about her, that intrigues you and you want to approach her. But uhhhh... You ask yourself, how should I approach this creature, so similar, yet so very different than me. Oh Boy, you are right... You can never know what's coming from those little dev(il)s! But Boy, be brave, that is what she wants you to be. You want to speak to her. Good, great in fact, girls like to be spoken to! Girls like attention of Boys, in general. She probably wants you to speak to her, too. Or not. LOL But anyway, you should take your chances, what's there to lose?! So you decide you'll go for it, you will address her! Wow, Boy, you really impress me, things are getting better and better, you are on a good way there! It's a good sign, it means you have guts, more then other boys do! It enormously improves your chances with her! Oh, Boy, don't disappoint me now! What do I hear: “Hey ya, whatsap?!” (Nothing is up, only my mood can be down reading those lines! ); “Hope you are ok.” (Of course I am ok, why wouldn't I be?! Even if I was not, who are you that I would tell you?! ) ; “What are you doing?” (I am loosing my precious time here on nonsense! ) Hey Boy, come on, you can't be serious! I know you can do better than that! I believe in you! You have to distinguish yourself from any other boy. You are unique, unrepeatable, there is only one you, there was never before and never will be. You have to show her that, you have to let her know that. Say something funny, say something witty, say something silly, some short recent anecdote, say something clever, quote a book (you don't read, Boy?! You should!), quote a song, movie, play with words... Make her smile, make her laugh, make her feel, make her think. Wake up her inner being, she will open her eyes, open her ears, to better see you, hear you. Leave her thirsty, to wish for more! After that, you are in the saddle, everything is up to you, Boy! This is great advice! This seems extremely common when attempting to strike up a friendship/relationship with someone online, which has always felt so awkward/unnatural to me. Much easier when you've shared an experience together... be that a shared class or place of work, or even attended the same party or rode the bus together. But yeah, "hey, what's up" and "what are you doing," are about the least memorable way to approach someone. Step your game up, hypothetical boy!
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krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 13, 2018 2:22:02 GMT -5
Much better lol welcome Great intro btw Thanks! I saw Broadway's Little Mermaid last year (the touring show), it was incredible. I'm guessing the same actress played Ariel - I thought she was absolutely phenomenal. It is my second favorite show that I've seen (after Jersey Boys, I saw on Broadway). It was by the far the coolest in terms of set design, costuming, special effects, etc though by far. Awesome! Yeah, she's always been incredibly talented. I remember her singing at middle school and high school assemblies and such, and just blowing everyone away!
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krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 11, 2018 16:27:49 GMT -5
I am really a bit confused here, so I would like to hear open and honest thoughts of pwd members, but also from devs who are/were in fulfilling relationships with pwds, who were aware of their attraction at that time. I read : "I love devs", "I really like devs", "Thank God devs exist" And, to be honest, I am not sure if I can understand. Would, please, someone, anyone, try to explain? My rational brain is analyzing: You are a person with disability, this or that, theoretically doesn't matter. It is not something that defines you, it is not the most important part of you, it is simple one of your many characteristics, integral part of who you are. No matter how well you have accepted that fact and that part of yourself, how comfortable you are with it, it's is probably the thing you'd get rid of the first, if you could, not to use harder words, like hate it or something. You work hard on many fields, very often even harder than most of AB people do, because you want to be accepted for who you are, you want to show the world how much you worth, all together, not just what is obvious at the first glance. And you want to be accepted and appreciated and respected for all that. And that is absolutely fine. Now here I come, a devotee. I don't like you BECAUSE of disability. I like you ALL together, I do see all of your qualities, everything that makes you YOU, as a person with all your virtues and faults. I like it all together, I find you smart, funny, interesting to be with, inspiring to talk to and very attractive. And yes, I have a crush on your disability. I really like about you something that you are the least proud of. How can two of that combine? Something that you don't really like about yourself has contributed to my attraction towards you and I really love that part of you. Wouldn't you rather like non-dev girl who would love you DESPITE your disability, so you can “hate it” together? Isn't than a relationship with a devotee just a compromise? Like “ok, what the f... , let it be”, but deep in your heart you'd rather have non-dev girl who “looks over the chair”, and not me, “looking at you in the chair”?! Wouldn't that be the true love story? The triumph of Love over everything, even disability? Wouldn't that be a proof to you that yes, DESPITE the disability you are as worth human being as all the others?! Because she has chosen you, yes, you, among all other men, DESPITE of it?! That you finally “won” in that unfair battle? Isn't then devotee just a comfort-reward? Only the second best, something you are satisfied with in a lack of “better”?! I don't want to be second reward! I want to be a main premium! For everything I am, all good and bad, all together! And at the end... Let me put it like this, in boy's terms. You can chose, there are two girls with the same “performances”, exactly the same and they both want you and you like them equally. One is dev the other is not. Tell me, honestly, from the bottom of your heart, which one would you choose? First of all, bravo! You are clearly a very compassionate, self-aware person! I don't want to speak for all PWDs, but personally, what I "hate" about my disability is not so much how it affects me, but more how it affects the people around me. I don't necessarily hate that my disability causes me to need help with certain things, but I hate how that responsibility falls on my family and friends, and I struggle with feeling like a burden on the people i love. To me, a Dev isn't someone who would love me DESPITE my disability, and simply TOLERATE the challenges it brings. A dev would love me AND my disability, and embrace the challenges it brings with me. Someone like that would do wonders to alleviate the guilt i feel for burdening the people around me.
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krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 11, 2018 14:41:05 GMT -5
Hello everyone, I hope my message finds you all in good health and nice spirit! Although I know about this place from years and years ago and I was reading at times, it seems that only now the time has finally come for me to join it. Being aware of my “weird” attraction for as long as I can remember, wasn't easy for me to cope with and yet knowing very precisely what it is, what I am, I didn't want to identify, to belong to any similar group. I was probably in denial, but there has always been one more thing that was bothering me... Very usually accent is, both by devs and pwds, on the physical side of the whole thing. Oh how I wish it was so simple for me, it would make things much easier! For me this attraction yes, has clear sexual aspect, but it is far more complex than that. I have a strong desire, need, an urge to bond with pdw, another human being, on so many different, deepest levels. I am bright, positive, easy going person, very friendly with pretty good social skills. I can easily fit into any group, enjoy it and lighten up the atmosphere, being it kids, elderly people, respectful members of society, professionals or just simple, ordinary folks. By nature I am opened and extremely curious, always thirsty for new knowledge and experiences. I adore nature, animals and I spend outside as much time as I can. Water is my great passion, in all it's states and if I'd believe in previous life, which I don't , I'd thought I was some water creature, mermaid preferably! My mind is very rational, analytic, but I am also a big dreamer, too. Although turning 40 soon, mature and experienced enough, I am irreparable romantic and I still believe in fairy tales and happy ends. I hope that in the time that comes, I will have an opportunity here to openly express my toughs and emotions on various matters. The main reason I finally decided to join the site is the atmosphere and the level of communication here. I see a lot of smart, strong individuals very well aware of themselves and the world around us, who have a lot to say and know how to express it respectfully. I believe that reading posts and replies both from other devs and pwds will help me understand myself better and at the end, maybe I can contribute in some positive way to this small community, too. Welcome Missparkle! Love the way you describe yourself! I'm pretty new here too, but the members seem pretty great so far.
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krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 11, 2018 14:31:44 GMT -5
yum, now I want Seafood! Lol
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krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 8, 2018 3:20:10 GMT -5
Always thought I would stay single but started a conversation with a new user over two years ago, one thing led to another… with Melina26 Don't ever count yourself out… Congratulations! You both look incredible!
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krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 7, 2018 23:17:47 GMT -5
It's possible that there are, but you're going to have to try a little harder than that. What are you looking for? What are your interests, experiences or job like? What is your disability? Haha, fair enough... I have Muscular Dystrophy, or more specifically Spinal Muscular Atrophy. I'm a graphic designer, and I run my own clothing company. When I'm not working I love sports, be it playing with my wheelchair soccer team, or cheering on my Seattle Seahawks and Mariners. I love going to the games, and have met several of my favorite athletes including Ken Griffey Jr and Russel Wilson! Contrary to my inner jock side, I also enjoy the theatre. The pic I posted was actually taken at the Book of Mormon musical. For Christmas I took my mom to see Elf the musical. I saw Wicked on Broadway in New York, and last year I got to see a friend I grew up with star as Arielle in a national tour of The Little Mermaid. I also love listening to music and going to concerts. I'm a big fan/supporter of my local hip-hop/rap scene. Just from going to shows I've formed friendships with, and supplied merch for several local artists through my clothing company. I've become especially close with Seattle rapper Raz Simone. I've made merch and done design work for him, partied in hotel penthouses with him, recorded with him in the studio, I make a brief cameo in one of his music videos, and he even arranged for me to travel with his crew and receive an all access pass to a festival he was performing at with Chance the Rapper and Outkast! Traveling is another passion of mine! I've currently been to 14 states and 4 countries, including Costa Rica and New Zealand, and I'm currently trying to plan my first cruise to the Caribbean! I'm not really looking for anything specific. Just a cool, good-hearted person I can vibe with.
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krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 7, 2018 1:52:22 GMT -5
I noticed a house in our neighborhood that was being redone. Wheelchair ramps all around the house-so I was curious. Found out it was a good neighbors house growing up. Her mom passed away and left the house to her. I was walking by today and she was working on the house and I asked her about it. She proceeded to tell me that her dad used a wheelchair and life in a non accessible house was so hard ( she is 67). When her mom was getting close to.passing on she told her daughter to.make the house accessible for someone who uses a chair. She showed me around-it is BEAUTIFUL!! 5 bedrooms, 4 bathrooms-all countertops accessible!!! All bathrooms accessible!! SHE did her homework! I walked out feeling so hopeful to the family that's needs a house like this!!!! That's so cool! Do you have pics of the house?
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krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 6, 2018 21:44:45 GMT -5
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krissnap
New Member
Posts: 17
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by krissnap on Jan 5, 2018 23:04:55 GMT -5
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