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Post by roger888 on Dec 17, 2013 15:06:12 GMT -5
With my level and type of disability I wouldn't take the full cure in the unlikely event that it was available.I would need a full body transformation to completely eradicate all aspects of my disability and that would be too much,especially at my age.I would take the treatment that gave me sensation in every part of my body,but on the condition that it provided me with sensation not pain.I don't get much discomfort from my disability and I don't see why I should trade that for a cure.
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Post by kivic on Dec 17, 2013 16:43:07 GMT -5
I think this is possibly a good questions for the devs too.
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Post by Ximena on Dec 17, 2013 16:49:21 GMT -5
I think this is possibly a good questions for the devs too. Well there was a thread about would you want your SO to take it, but do you mean personally?
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Post by kivic on Dec 17, 2013 16:56:29 GMT -5
I think this is possibly a good questions for the devs too. Well there was a thread about would you want your SO to take it, but do you mean personally? Yeah, personally.
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Post by matisse on Dec 17, 2013 16:59:19 GMT -5
We used to go through this question periodically on a wheeler message board. It was the folks who were born with the disability that would sometimes say they wouldn't take a cure, but even that was quite rare.
So I am quite surprised to see several guys saying they wouldn't do it. It seems like some are assuming there would be some downside to getting the cure, even though the Q doesn't say there would be. But if there is no downside, then why the hell not?
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Fabio
Junior Member
A Brazilian guy with SB, here to talk to people and possibly make friends
Posts: 57
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by Fabio on Dec 17, 2013 17:03:00 GMT -5
It could taste like vodka, I would take it fearlessly. I would try it. I´m 29 now, disabled since birth and like any other person, this fact gave me a lot of things to deal with, some easier than others, but the result of it is that life have the balance I really needed now. I do recognize that it molded a lot of me, in good or bad ways but nothing that stopped me from using my possibilities to live life positively. I would take the cure not only because of the problems I face due to my condition, but... How would life be with more mobility or less pain? I can deal with the issues I have today, but if I can improve certain things, why not?
As for some potential problems... If the cure brings several body changes, it could lead to self image issues, common condition when your body changes drastically, but there´s treatment for it, no deep concerns.
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Post by doe on Dec 17, 2013 17:12:33 GMT -5
No. I have had enough surgeries. I am who I am. This response totally rocks, BB. Not the surgeries part (sorry to hear that). Self acceptance is the basis upon which all the good things in life are built.
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Post by Corey on Dec 17, 2013 17:51:19 GMT -5
No. I would like to not get any weaker, and it would be nice if exercise led to a marginal increase in strength. But I dont really want to walk. Any mope can walk, and I kind of like to be different. Keeps things interesting.
Only way I would consider it was if I was in a relationship with someone who wanted me to.
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mcc2121
Junior Member
Posts: 67
Relationship Status: Single
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Post by mcc2121 on Dec 17, 2013 19:17:01 GMT -5
Maybe Robert Smith, but I don't have enough seat belts for all of them.
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Post by Inigo Montoya on Dec 17, 2013 19:38:24 GMT -5
Maybe Robert Smith, but I don't have enough seat belts for all of them. Even with just him, I bet it'd be just like heaven. And quickly... On Topic! As a dev... I'm not sure I'd have an opinion. I think that people have to do what's right for them. I don't have a dis SO so I'm not sure how hard it would be to pull all that stuff out of the equation. My main concern would be health, I think. I had one of those situations where you hypothetically face that kind of thing this summer when my dad had a cancer scare. He has always maintained that, if he got cancer, he would eschew treatment... which would officially make my mom and sis insane and combative. Before he spectacularly dodged the bullet, as he does, I was already working through that in my head and coming to terms with it. You have to meet people where they are and support the decisions they make... make sure they have all the info, if you think their info is incomplete. It can be very challenging to remember that someone isn't wrong just because someone doesn't reach the same conclusion you do. And that being screamy about it serves no one. (IMO)
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Post by jturk on Dec 17, 2013 19:45:50 GMT -5
I was just about to come back in here and post something about the band by the same name but I guess two of you beat me to it lol
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Deleted
Deleted Member
Posts: 0
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Post by Deleted on Dec 17, 2013 20:13:10 GMT -5
How about this twist on the darthoso's question...for the disabled guys, if offered a cure, would you take it? I suspect the answers would be all over the place, from person to person and day to day. As for me, I probably wouldn't take it, because my disability isn't very limiting and is so ingrained into my self-image that it would be emotionally disorienting to change. In a way, it's like asking someone if they would like to suddenly be 7 feet tall. That might sound interesting to try, but ultimately would also be disorienting. That might sound like an odd thing for me to say, but I have had a roughly similar experience: at one time I had an experience we all dream of (financially). Prior to the experience, my assumption was that it would be fantastic. Well it was good, but at the end of the day I was not one iota happier. That was a surprise; I expected I would be in the clouds, but my experience was quite different. My guess is that people who suddenly become disabled have a very disorienting experience, and would greatly prefer to be back the way they were, but those who were born with disabilities would be less clear-cut. I'm kind of in the middle, I was born with the defect, but it wasn't an issue until early adulthood. I've been A/B and dis, but it wasn't a sudden transition. So guys, would you take the cure? I have spina bifida, which, as most of us on here know, is congenital. It's mostly a state that I am used to. I will say, however, that as I have aged, my bowel and bladder health have nosedived, and this has been frustrating. My mobility is something I could basically care less about, however. If I could somehow take a cure for just bowel and bladder, I might consider it. All that said, a cure for SB is a VERY dangerous prospect. The spine needs to be fixed. Even if we knew how to do it, if a curative surgery went wrong, that could very easily spell death. I like living. I am an Atheist, so I believe in no afterlife. So, doing what I can to live a long life is important to me. I am not willing to lose my life in order to achieve the prevailing definition of normal in our society. So, in answer to your question, no.
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Deleted
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Post by Deleted on Dec 17, 2013 21:27:07 GMT -5
Worf in Next a Generation got cured, so you never know... OMG, that scene--I remember it so clearly. When they take someone else's spine out like a piece of spaghetti and somehow deposit it straight into his back-- bam, instant cure! All across the country, surgeons were smacking their foreheads and shouting, "Why didn't I think of that?!" I love Star Trek, but that scene just killed me. I could overlook most of the tech nonsense on that show but when even I know the science is bad, it's really really bad. Totally with you on that one… but more so for the reason that all of a sudden there was a magical cure… because let's face it.. a character with paralysis even if its managed by electrodes that bypass the broken part of the spine (when he falls in front of alexander) is not gonna work as part of the Enterprise crew. Why DS9 was awesome because it delved more into that arena a little bit. AND HELL YES I would take the cure… Even if it came with some ridiculous odds like warf was given. 20% chance of success 80% chance of death… still answer would be "Yes please."
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Deleted
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Post by Deleted on Dec 17, 2013 21:30:26 GMT -5
No. I have had enough surgeries. I am who I am. This response totally rocks, BB. Not the surgeries part (sorry to hear that). Self acceptance is the basis upon which all the good things in life are built. accept yourself.. and everyone has the right to chose what they want. But just because someone would choose a cure doesn't mean they don't accept themselves and aren't living. But you better believe I try and improve my life everyday (when I was AB and now). I mean.. if there was a surgery that would let me breath underwater or fly… I would do that too…. I LOVE myself and who I am… but gaining mobility and part of who I was and RE-INTEGRATE it to who I have become because of this injury would only make me a stronger and better person. Just my two cents.. again… live how you want… this nobility of accepting your situation when you no longer need be in it seems disingenuous.
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Post by MotorcycleCrash on Dec 17, 2013 23:51:09 GMT -5
Definitely, I wish. I'm waiting for them to build a machine like in Starship Troopers! I'm not going to be the test monkey though because I would be scared of getting all my feeling back but unable to move! That would suck
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