|
Post by Hopper on Jul 8, 2015 16:11:24 GMT -5
Only partially in order to fix my mouth. Drooping to one side makes it hard to eat and speak in a more eloquent and dignified manner instead of slurring like Popeye and eating only half my food while wearing the rest.
|
|
Dalvarez
New Member
Posts: 43
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
|
Post by Dalvarez on Aug 4, 2015 3:42:00 GMT -5
Cure sign me up for that ride!
|
|
redstudent
Junior Member
I'm a adventurous spirit and slowly coming out of my shell if you are interested pm me
Posts: 79
|
Post by redstudent on Aug 4, 2015 8:11:40 GMT -5
I would also take the cure
If it could help my speech
as with cp it's hard for me to comunicate verbally
|
|
slampoet
New Member
A person's a person, no matter how small.-dr suess
Posts: 44
|
Post by slampoet on Nov 17, 2015 0:42:36 GMT -5
i wouldn't tke it. my disability is part of who i am. I wouldnt be the person i am today without it. first of all, i believe it keeps me humble, and secondly i've had gr8 experiences i never would have had without it... biggest of all i would say is meeting the cast of corner gas through a wish from the starlight wish foundation
|
|
Deleted
Deleted Member
Posts: 0
|
Post by Deleted on Nov 17, 2015 13:55:40 GMT -5
Its so hard to say....but I probably would. I appreciate the viewpoints I have on life. How observant I can be. How I can read people. But at the same time, I miss all the things I don't get to do far more.
|
|
|
Post by dannyboy95 on May 20, 2016 15:42:36 GMT -5
I would generally would not consider myself disabled but I do have a light dyschromatopsia which means that I have trouple distinguishing between certain hues of red and green. Not so extreme that I can't distinguish the red and green on a traffic light but in certain situations it shows and I cannot identify a colour without doubt. I've recently seen videos of people who are actually colour blind that get glasses which shifts the colour spectrum so they can see colours. This also works for dyschromatopsia. For a time I was thinking I need to try this but by now I don't think I want to. Colour perception is something very individual and is different in every person. So my world is the way I see it. I think if I put on such glasses I would see a somewhat "fake" world. Also I would probably feel sad about the moments that I can't repeat with the new improved vision. I am still considering it though because I do a lot of photo editing and precise colour vision helps a lot doing that.
|
|
wheelsEsq
Junior Member
creative thinking can always outweigh physical prowess
Posts: 66
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
|
Post by wheelsEsq on May 25, 2016 8:17:44 GMT -5
As someone who was born with it - No because my life would be totally different. I sometimes think I was a week away fronm having a completely different life. Think Back2theFuture and McFly
When it comes to childhood I would have gone to my AB bro's schools rather than the mainstream ones I did so I would of have a diff experience of edu/ teachers and peer group, so uni prob would be a different exp.
|
|
|
Post by Armus on May 25, 2016 22:14:52 GMT -5
The part of me that really dislikes being in physical pain and having to rely on others sometimes says yes, but the part of me that really likes who I am is much louder and that part of me says no. Being disabled and tiny is really wrapped up in my identity and without it, I'm not really sure who I'd be. My ex used to say that she probably wouldn't date me if I were normal sized and not fragile, not because she had devvy tendencies (look at me, using your terms already) but because I'm an often times aggressive person in some ways and the disability has created a lot of softness around my edges that I'm not positive would be there if I didn't grow up with it. It's entirely possible that I'd be some sort of raging asshole had I not gotten that fucked up collagen gene.
|
|
|
Post by Ackrin on Jun 11, 2016 17:54:31 GMT -5
I would take a cure, Even if it were a partial cure. I can care less about walking. If I can get the use of my hands back or even just my thumb and index finger on each hand that would improve my life so much.
|
|
|
Post by Pony on Jun 11, 2016 19:37:30 GMT -5
I feel ya, brother....i was thinking about that today, as I'm just the right level that makes everything a struggle. The frustrations really start to mount up until i'm pissed off. I say things, like "my fuckin crazy life is too much." It's not just my hands, but lately it's my van, too. But sometimes they're closely connected. I don't let any of it stick to me, or ruin my day, but there's a level of stress most ABs could never imagine. Fuck walking, just give my hands. But, if i had that kinda power, i'd want it all back.
|
|
|
Post by Kela on Jun 12, 2016 18:32:45 GMT -5
Would I take a cure for SMA? Hmmm that is a difficult question I have always said when asked "Would you ever swap bodies with my twin?" (If magical bullshit was a thing.) as a definitely not, I can easily handle my disability, it has always been apart of me and has in a sense moulded me into who i am today. As for a cure, I mean as others have said, for me it would be a transformation of basically everything neck down (Well not everything...he works normally.) It would really completely depend on the cure, ie how long would the recovery and rehabilitation take? How would it affect my body? Pain? I mean if it was a magic pill then more than likely yes, but really i just would not know.
|
|
|
Post by frankj on Jun 20, 2016 10:03:34 GMT -5
Yes, I would absolutely take the cure if it was offered.
|
|
|
Post by PacMan on Feb 17, 2018 17:40:58 GMT -5
I’ve never really given it a lot of thought if I’m honest as its just something that can’t happen, however I know for sure 100% I would never have children if I couldn’t be completely guaranteed by the doctors that my child / children wouldn’t be born with the same condition as me. I could never condemn them to the same life of pain and suffering I’ve had to go though both physically and emotionally.
|
|
|
Post by elbs on Feb 17, 2018 19:19:12 GMT -5
I know this is aimed at the guys, but as an autistic person, I would definitely *not* want a cure. It would be like invasion of the bodysnatchers - I just wouldn't be me anymore.
It's interesting to hear that many people with purely physical disabilities don't want a cure either. For me it's very much because my disability shapes my personality - to a large sense it *is* my personality. I would happily cure my asthma and hypermobility (I'd miss the flexibility, but not being in chronic pain would be worth it). And especially my allergies - I used to have pet rats, and I'd love to be able to have rats again!
And then there's my PTSD. That's a tough one. It's shaped who I am a lot, because I was traumatized as a child, so I have no idea who I'd be without it. But it's caused me so much pain. I guess I'd like to get better, but keep the lessons I've learned. Which is what therapy is supposed to do, right? But it's weird, sometimes I don't want to get better at all. It's just so scary to face how big of a change that would be for me.
|
|
napoleon
Junior Member
Posts: 89
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
|
Post by napoleon on Feb 19, 2018 5:49:51 GMT -5
I'm afraid I definitely would, and without a second's hesitation. yes it would be difficult to readjust etc but I am in the unique position that if I wished to revert to being blind, I'd just where blackout glasses or similar devices. I'm under no elusions, the job I have, the position I am in and the way I think have been shaped by blindness almost as much as everything else. I would not be where I am, doing what I am doing, if I weren't. Even through the months of therapy and adaptation that would certainly follow...of course I would, in a New York minute.
|
|