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Post by Deleted on Mar 28, 2016 18:21:43 GMT -5
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Post by Clair deLune on Mar 28, 2016 19:14:42 GMT -5
I had come across this before and thought the exact same thing Dani.
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Post by Deleted on Mar 28, 2016 19:23:07 GMT -5
What I get out of it that she is trying to avoid becoming "Quadriplegic" by using a wheelchair and other mobility restricting orthopedic devices full time...it makes no sense to me and if she is a pretender she is leading people on big time and that bothers me I guess. She even has a family and children apparently. If she is a pretender I just can't grasp that she is pulling the kids into this charade as well unless they know....I don't know, it is all so strange. I always thought myself as accepting of pretenders and I know it is tough for people to live with BIID but I want honesty...
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Post by bowlergrl0524 on Mar 28, 2016 19:31:08 GMT -5
I was just looking at something online Friday or Saturday and thought the same thing, that this was fishy. I'm just not sure how I should feel about her.
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hungryquad
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Taken by: bowlergrl0524
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Gender: Male
Dev Status: Disabled Male
Relationship Status: In a relationship
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Post by hungryquad on Mar 28, 2016 19:50:34 GMT -5
What I get out of it that she is trying to avoid becoming "Quadriplegic" by using a wheelchair and other mobility restricting orthopedic devices full time...it makes no sense to me and if she is a pretender she is leading people on big time and that bothers me I guess. She even has a family and children apparently. If she is a pretender I just can't grasp that she is pulling the kids into this charade as well unless they know....I don't know, it is all so strange. I always thought myself as accepting of pretenders and I know it is tough for people to live with BIID but I want honesty... It is extremely weird and the logic does not make any sense. It almost looks like something the onion would post . First of all becoming a paraplegic would not mean she couldn't breathe on her own . Second of all she is going to avoid being in a wheelchair by being in a wheelchair? Doesn't make any sense
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Post by matisse on Mar 28, 2016 20:28:04 GMT -5
Sounds odd but how can you lie if you identify the place that gave you the medical advice?
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Post by Clair deLune on Mar 28, 2016 20:47:00 GMT -5
matisse, i guess if the place that gave you the medical advice is as fishy as your story... advancedspinalmanagement.com
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Post by Emma on Mar 28, 2016 20:57:36 GMT -5
Check out the website of Advanced Spinal Management (http://www.advancedspinalmanagement.com/home.html) its pretty minimal and could have been made up by her. I highly doubt with a website that looks like that I highly doubt they have treated 53,000 people. I agree the whole thing looks super suspicious.
"I work for Advanced Spinal Management and am part of the team to Stop Quadriplegia in females who suffer from severe spinal degeneration." Has anyone EVER heard of this? If its that prevalent how come no one else has ever heard of this type of treatment?
This is also a bunch of BS "With over 53,000 females in the Advanced Spinal Management program, the majority of which have been with us for over seven years, our success in changing the course of early onset degenerative spinal conditions is indisputable. Some 42,000 or 92.8% of those who have been following the strict New Way if Living for five years or more have either managed to stop or had degeneration rates slow to those of the normal in the ageing process. "
If you google her name she has made the rounds with the news getting lots of attention for her terrible, life changing condition. I'd say she is a faker/BIID for sure.
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Post by Emma on Mar 28, 2016 21:21:12 GMT -5
TC I don't think she wan't to be paralyzed, I think she wants to wear braces all over her body.
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Post by Deleted on Mar 28, 2016 21:30:50 GMT -5
heh, I just took a look at that website. It is definitely not a legit business. The site is hosted by godaddy and built using free software that comes with a godaddy shared hosting account. Also the owner of the site has blocked all contact info from any whois search. You can't even find out who registered the domain, its an additional fee to hide that info and no public organization would pay that fee when they can just use the LLC name, or whatever business type they are, in the registrar slot. Its also only 2 years old as of March 20th.
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Post by Emma on Mar 28, 2016 21:38:23 GMT -5
Her blog has lots of comments and she responds to every one of them. I'd guess they are all fake since they all involve people talking about having some pain or minor disability and opting to use a chair. I'd guess they are all fake and written by her. This woman is a wacko!
Also her husband has MS and opts to use a chair and her daughter also has EDS kyphoscoliosis type and has to wear a Milwaukee brace?? total BS.
If anyone what to contact her I found this email: ruth@advancedspinalmanagement.com
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Post by Clair deLune on Mar 28, 2016 22:26:05 GMT -5
The more I read the more I keep shaking my head and going "but that's not a thing!"
I mean, she has hip dysplasia and yet she used to run marathons? That's not a thing, right?
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Post by Deleted on Mar 28, 2016 22:37:15 GMT -5
I am glad you all feel the same way about this than I do....the websites are fishy, the comments I am almost thinking she made up herself and just posts that junk. And yes, you can't contact anyone on the actual website...it is so weird but it also makes me angry that she leads people on and if she is a pretender and she putting her kids through this kind of situation, it is difficult to swallow for me....if she is a pretender I think she went way overboard here because she is playing a strange game. As I said, I feel bad for people with BIID to a certain extent and I can't imagine living this way but I still want them to be honest...I wanted to be more open minded to this but she actually creeps me out!
I think she made up all this stuff about "her" condition. Why do you need arm braces if you have hip dysplasia? It is all so weird.....
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Post by matisse on Mar 28, 2016 22:49:50 GMT -5
Her blog has lots of comments and she responds to every one of them. I'd guess they are all fake since they all involve people talking about having some pain or minor disability and opting to use a chair. I'd guess they are all fake and written by her. This woman is a wacko! Also her husband has MS and opts to use a chair and her daughter also has EDS kyphoscoliosis type and has to wear a Milwaukee brace?? total BS. If anyone what to contact her I found this email: ruth@advancedspinalmanagement.com My suggestion is that no one contact these people. It's better to stay away from nutcases.
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Post by Emma on Mar 28, 2016 23:09:29 GMT -5
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