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Post by mona on Mar 6, 2018 7:35:52 GMT -5
Thank you for the update, queenkala. I'll keep my fingers crossed that it will help. 💕
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Post by shape on Mar 6, 2018 7:39:59 GMT -5
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Post by queenkala on Mar 6, 2018 9:05:24 GMT -5
Thanks all!! I really appreciate your support!
I had my first B12 injection yesterday, and i have a b12 mouth spray that is my new best friend. According to my doc, It will take until the 3rd injection or so before i start to feel the numbness subside (if this is the actual root of all my issues), so that should be early next week. I'm really looking forward to being able to type properly again, and i'm so looking forward to getting back to work. i'm going insane at home!!!
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melita
Full Member
RIP
Posts: 141
Gender: Female
Dev Status: Devotee
Relationship Status: Divorced
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Post by melita on Mar 6, 2018 15:25:14 GMT -5
So it looks like it could be an Autoimmune Disease called Pernicious Anemia. My body is not absorbing b12, so I’m not creating any new red blood cells. Treatment plan is 2 injections of b12 a week for next 6 weeks, then 1 a week, then hopefully down to 1 a month. But forever. Not so bad. I’ll take it. Thanks, I feel better now.
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Post by queenkala on Mar 26, 2018 17:26:28 GMT -5
Its MS. Got diagnosed today.
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Post by blueskye101 on Mar 26, 2018 17:58:20 GMT -5
Its MS. Got diagnosed today. Damn, that's shit! I'm sorry it wasn't simple like B12. Please feel free to share or vent here or in message.
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Post by midwestguy on Mar 26, 2018 21:13:35 GMT -5
Its MS. Got diagnosed today. Ugh, I'm so sorry to hear this
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Post by Emma on Mar 26, 2018 21:42:17 GMT -5
My Mom has MS so I have some real life experience. In the end I think the prognosis for MS has a lot to do with how you manage it but that doesn't mean its easy. My thoughts are with you.
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Post by lucretia on Mar 26, 2018 22:19:24 GMT -5
This is incredibly shitty news. 🙁🙁🙁
How's your support system?
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Post by shape on Mar 27, 2018 3:29:34 GMT -5
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Post by devogirl on Mar 27, 2018 7:49:26 GMT -5
Very sorry to hear it ☹️
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Post by happyface2013 on Mar 27, 2018 8:57:12 GMT -5
Sad to hear this. Hope your doing okay.
As a fellow Irish person let me know if I can help in any way.
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Post by queenkala on Mar 27, 2018 14:47:01 GMT -5
Thanks all, much appreciated.
I've been told its very mild at the moment, and my neurologist did say about a million times that getting diagnosed with MS today is nothing like it was 5-10 years ago and that the treatment is good. I know there's no cure, but its a manageable condition now. I just need to get one more spinal tap done, then I can start treatment; an injection of interferon every second day.
i'm going to be as positive as i can about the whole thing, i have an excellent support system in place. My family is incredibly close.
Plus, i'm getting feeling back now in my hands and well the rest of my body. The doc thinks it should all return to normal until i have another flare up and then if it starts to flare up again, i can take steroids so that the symptoms are minimal. Basically, it shouldnt be as bad as it is now ever again, or for a very very long time.
I need to stay positive and just get on with my life.
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Post by gshotta on Mar 27, 2018 15:07:33 GMT -5
I have an ex that went thru the same thing 8 years ago , keeping working and as active as poss helped her out loads when well. She had certain things that let her know she was going to have a bad few days like the band of pressure in your chest is known as ms hugs and the weakening of legs in the days up to feeling unwell so gave her time to prepare for it . Hope all goes well.
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Post by shape on Mar 27, 2018 15:29:59 GMT -5
Yes, queenkala. Stay positive, hope it all works as well as docs expect and you can handle it. 😘
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