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Post by Experimentalist on May 7, 2016 14:10:37 GMT -5
It's not him being a C5 and driving with a joystick I can't get over. I know that's a thing IRL. It's that he's supposed to be a C5, but I think I remember in the book he has some hand movement, but no arm function. I know every SCI is different, but that doesn't make sense to me and it just seems so convenient. I agree that does sound a bit contrived. I also agree that off-the shelf chin or sip-n-puff controls are quite bulky. That and many other parts on my chairs are custom built to make them much neater. Certainly doesn't get in the way of kissing
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Post by harmonniousvision on May 7, 2016 14:15:24 GMT -5
i can't imagine anything getting in the way if you really want to kiss someone... those things move out of the way don't they?
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Post by Maurine on May 7, 2016 14:30:24 GMT -5
Why would his inability to move his fingers imply that he needs a headrest? I've neither read the book nor watched the trailer, but it's unrealistic that he would be able to move a finger, but unable to move his arms and shoulders. Maybe there are incomplete quads like that (a para recently told me of quads he knows who can walk but don't have much finger function), but I would be surprised as it's actually the other way round. I know quite a few quads with good arm function and varying degrees of hand/wrist movement but no finger movement. Most of them push manual chairs or at least manual chairs with push-assisted wheels. I've met quads with a little arm movement and no hand movement who use power chairs with a joystick. All the quads I know of who don't have arm movement, don't have hand movement either, let alone finger movement. I remember watching another movie with a high quad who couldn't move anything but one finger. Maybe they do this because it makes it easier for the actor. I've always thought that an SCI between C5 and C6 would be the most difficult to fake.
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Post by strawberrybubblegum on May 7, 2016 16:25:22 GMT -5
i can't imagine anything getting in the way if you really want to kiss someone... those things move out of the way don't they? They do. But in those romantic scenes everything goes oh-so-smoothly that the moving away of the control would ruin the moment and not make it perfect, as it should be. Plus, they're extra-bulky, as mentioned above, and I suppose it would make the otherwise oh-so-perfect looking quad seem even more disabled. I don't know, I'm rambling and being a bitch over this, but as I knew it would happen, I'm already bashing and getting upset over all the little mistakes we notice as devs.
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Post by Experimentalist on May 7, 2016 18:14:25 GMT -5
They do. But in those romantic scenes everything goes oh-so-smoothly that the moving away of the control would ruin the moment and not make it perfect, as it should be. Plus, they're extra-bulky, as mentioned above, and I suppose it would make the otherwise oh-so-perfect looking quad seem even more disabled. I started another thread on various chair modifications: paradevo.proboards.com/thread/7089/zen-art-wheelchair-maintenanceI know changing drive system is a big thing, but this works really well for me. It's much smaller and flexible so it bends out of the way. It's natural position is actually to the side of me and I lean over a bit and grab it to drive. It certainly doesn't get in the way of kissing, sitting together or anything else
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Post by devogirl on May 7, 2016 21:48:41 GMT -5
the way his body is described in the book injury level etc leaves a lot open to interpretation... He can move his fingers a small bit, presumably enough to control his chair, but not arms? I think in one of the movie trailers there's a close up of him moving his fingers to touch her. It was very well researched in my opinion in terms of realistic representation of the injury it gives. Also, his lack of headrest etc was explained to me that it would depend on where they fused the vertebrae etc I don't know... for me it will be more devvy to see it vs read it but in reading it the way its defined is a stretch i almost can't believe it got published with them like didn't they do any research? it was like she did a basic google about it and ran with it... Ugh, this makes me hate the book even more! It's such a common misperception that paralysis starts at the shoulders and goes down to the fingers, when actually it's the reverse--the fingers go first then the bigger muscles up the arms. But I see this so often even by published authors who should know better, or at least have professional editors correcting them.
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Post by hail on May 8, 2016 0:04:46 GMT -5
Recently gave the book a read to give me something to compare the movie to once it's released in Canada. The parts that I found most bothersome were when it kept suggesting that quads can no longer have sex, I'm guessing compared to how they did when they were able bodied. It felt like the author was really stuck on this point and kept reiterating it. I have a congenital disability so I have no real clue what it's like but I know in rehabilitation re-learning how to have sex is touched on. I know from guys with acquired disabilities here that they definitely have sex. Surprise! What a shocker. The author also seemed really stuck on the idea of Will wanting to die and it felt like she wrote everything else around this premise. I just thought the book could still be just as impactful if she had a bit more open mindedness surrounding the sex lives and desire of people with disabilities. Curious to see where the movie goes with it all but we can be prepared for major flaws as well.
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Post by harmonniousvision on May 8, 2016 1:16:17 GMT -5
I didn't pick up on any "no sex" msg at all in it... I felt like she didn't even MENTION sex at all... for me there was no implying quads can't have sex cuz there was just no sex... Did Lou and PAtrick even have sex? And also i believe in a lot of cases sex isn't taught in rehab. I've never been so some of the guys might chime in but i think most of them figured it out on their own... after.
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Post by hail on May 8, 2016 13:10:57 GMT -5
I didn't pick up on any "no sex" msg at all in it... I felt like she didn't even MENTION sex at all... for me there was no implying quads can't have sex cuz there was just no sex... Did Lou and PAtrick even have sex? And also i believe in a lot of cases sex isn't taught in rehab. I've never been so some of the guys might chime in but i think most of them figured it out on their own... after. Sex is mentioned a decent amount. Most prevalently when he chooses not to pursue things with Lou because he can no longer do the intimate things he'd like to with her. Obviously one would need to adapt after injury but why not go for it? Patrick has a marathon session of sex with Lou after he becomes jealous of Will and his adoration of her. She doesn't seem to enjoy it all that much. Sounds like a narrative I've heard before.
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Post by harmonniousvision on May 8, 2016 13:32:05 GMT -5
i do remember the marathon sex... i still feel like it was glossed over very subtly... maybe as a dev i was hoping for more graphic detail. The whole book was pretty disappointing for me. I'd hoped to finally have some kind of mainstream romance that made it OK to love and be intimate with a PWD instead it was the same ableist BS.
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scott
New Member
Posts: 30
Gender: Male
Dev Status: Disabled Male
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Post by scott on May 12, 2016 22:16:12 GMT -5
The trailer doesn't do anything for me, except make me cringe at times.
I have not read the book, nor do I plan on watching the film.
I commend Hollywood for acknowledging disabilities as least, despite the inaccuracies some have pointed out.
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Post by harmonniousvision on May 12, 2016 22:23:50 GMT -5
The trailer doesn't do anything for me, except make me cringe at times. I have not read the book, nor do I plan on watching the film. I commend Hollywood for acknowledging disabilities as least, despite the inaccuracies some have pointed out. They're acknowledging it in the worst possible way tho... Innaccuracies aside... They're romanticizing and portraying this love story that shows a PWD who feels like life isn't worth living anymore... It supports the ableist notion that too many people believe that life isn't worth living if you're disabled... Its made it this tragic love story instead of a positive one I think Hollywood has had better examples of acknowledging disabilities. Can't think of any off the top of my head tho haha which is the heart of the problem as a whole!
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scott
New Member
Posts: 30
Gender: Male
Dev Status: Disabled Male
Relationship Status: Single
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Post by scott on May 12, 2016 23:23:29 GMT -5
The trailer doesn't do anything for me, except make me cringe at times. I have not read the book, nor do I plan on watching the film. I commend Hollywood for acknowledging disabilities as least, despite the inaccuracies some have pointed out. They're acknowledging it in the worst possible way tho... Innaccuracies aside... They're romanticizing and portraying this love story that shows a PWD who feels like life isn't worth living anymore... It supports the ableist notion that too many people believe that life isn't worth living if you're disabled... Its made it this tragic love story instead of a positive one I think Hollywood has had better examples of acknowledging disabilities. Can't think of any off the top of my head tho haha which is the heart of the problem as a whole! Well that changes everything. . . for the better :-] If what you say is true, then I am more inclined to watch the movie. I very much admire those who choose death vs a life lived crippled. I think it sheds light on our situation even more. That in fact, this is no way to live. I think this is the way it should be portrayed, because that is the reality of many, and not just some 'ableist notion'
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Post by harmonniousvision on May 13, 2016 0:31:37 GMT -5
I'm willing to embrace and consider your position, but i think the world has seen enough of that. I believe there's dignity in death and i support a persons right to choose to die. I think its more important to raise awareness that PWDs have different lives but they are still lives worth living. I believe greater understanding of the potential for a good life is an important message. The message that life is meaningless and valueless if you're not AB is widely known and believed by many. Everyone is on their individual path and journey but I would rather live in a world where every person's life is seen as valuable, while simultaneously respecting an individuals right to do what they wish with their life. I believe every person has something to contribute to humanity as a whole and no matter the challenges they face they have worth. A world where strangers believe every PWD is better off killing themselves versus living and contributing is a sad state of affairs in my opinion. My child is disabled and i don't want her growing up in a society that thinks she's better off dead! I want her growing up in a society that embraces, encourages and supports her. I want her to believe she's just as valuable and has just as much to contribute as the blonde hair blue eyed football star from notre dame. I think if there was more positive examples of disability in the world people wouldn't be so afraid of it.
My opinions you're free to yours.
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Post by midwestguy on May 14, 2016 11:44:10 GMT -5
I'm thinking now I should read the book before the movie, I'm just not sure I have time to cram it in. My intent to view the movie is to see how inaccurately hollywood portrays the life of a quad. We know how unrealistically hollywood has glamorized romance, even the low points and strife, I expect to see that in this movie. There are great posts on this thread!
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