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Post by dannyboy95 on Dec 13, 2018 8:57:58 GMT -5
And it seems they seldom have issues with phantom pain or other discomforts that many amputees deal with. It's interesting how the mind and body relate in these things. The research I have seen suggests that BIID is effectively the opposite wiring in the brain to phantom pain. It is believed that phantom pain is caused because the brain is wired or programmed to believe there should be a limb there and cannot cope with the loss of it. In BIID it is believed the same part of the brain is wired to not have the limb so cannot cope with it's existence. Similarly the ability to move or feel parts of the body in SCI BIID. I find it really fascinating. R. Could you tell me which research you're referencing here? I'd be curious to read that as well. |
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Post by robbb on Dec 13, 2018 16:51:27 GMT -5
The research I have seen suggests that BIID is effectively the opposite wiring in the brain to phantom pain. It is believed that phantom pain is caused because the brain is wired or programmed to believe there should be a limb there and cannot cope with the loss of it. In BIID it is believed the same part of the brain is wired to not have the limb so cannot cope with it's existence. Similarly the ability to move or feel parts of the body in SCI BIID. I find it really fascinating. R. Could you tell me which research you're referencing here? I'd be curious to read that as well. It was sent to me by a guy with BIID that I was chatting to online, although he has disappeared back into the ether. I think, but am not certain, that it was this... R. |
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Post by dannyboy95 on Dec 13, 2018 16:53:33 GMT -5
Could you tell me which research you're referencing here? I'd be curious to read that as well. It was sent to me by a guy with BIID that I was chatting to online, although he has disappeared back into the ether. I think, but am not certain, that it was this: medium.com/matter/this-is-what-its-like-to-be-at-war-with-your-body-8476df17bddf R. People dissappearing back into the ether is unfortunately quite a commun occurance  Thanks for linking me that. I'll give it a read! |
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Post by robbb on Dec 13, 2018 16:55:12 GMT -5
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Post by kyliestarz on Dec 13, 2018 21:01:01 GMT -5
I get very aroused thinking about myself with certain disabilities, and in those moments I do 'wish' I was actually permentaly disabled, but I don't feel any kind of constant need to not have legs, or that my legs shouldn't be there. I guess that's the distinction between wannabes and BIID?
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Post by blueskye101 on Dec 14, 2018 17:41:44 GMT -5
What an in-depth and interesting article; especially about the brain mapping and the actual surgery. Thanks for sharing. |
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Post by robbb on Dec 14, 2018 17:45:07 GMT -5
I'll be honest I didn't have an especially open mind to BIID but chatting to the guy I mentioned really opened my mind and made me appreciate what a hard thing it must be to live with.
R.
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Post by ayla on Jan 30, 2023 14:53:55 GMT -5
I did it a few times - but it was way different from being a pretender or wannabe. It was more like "what if", just to imagine what I would do, how I would handle it. Possibilities that cross your mind when you are immersed in this "disability world". However it wasn't related to those disabilities I'm attracted to or at least my primarly interest. (…) But it's good to come back to reality. I absolutely love my able body and wouldn't change it for anything, I start to value my healthy body even more after letting my devness out. I can't even imagine how it must be frustrating for wannabe's and pretenders to understand their minds and desires. I agree with this entirely. When I was a kid I liked to imagine having a disability or pretend in play, as a way of problem-solving or wondering with curiosity and fascination how I would handle a situation. I often imagined the impact of sensory differences even though my dev feelings are for paralysis. I still do all of this in my daydreams but feel no desire to act any of it out physically much less wish to have that become my permanent reality. I am VERY grateful for my able body as it is now. When I’m spending a lot of time with a pwd, I spend even more time thinking about the specific ways in which I am able to do things they are not able to do, and always with gratitude (but not pity for them, if that makes sense). Like for example if I’ve recently been around a guy with no finger function, it might occur to me while chopping vegetables or washing my hair how much easier this task is for me (gratefully) while simultaneously thinking how much I’d enjoy watching him do things “his way,” and trying to picture just what that would look like (and feel like, from his POV). |
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